Originally Posted by Janc13
Is anyone dealing with Myelopathy? Symptoms similar to MS. Drop foot,
Constant right side pain, leg spasms, syrinx muscle weakness, any suggestions, do not want control meds. Only neuro tin. Help......
Hi, after 14 years of seeing neurologists I now have 3 posssible diagnoses. The first was PPMS, the second was HSP and recently Myleopathy.
I have seen 13 neuros during this time and my latest neuro referred me to a top MS doc in Leeds, but he rejected my referral! No reason was given and my GP is trying to get to know why.
Obviously after all this time, I have very little faith in neuros. Looking at Myleopathy support groups, I see there are several different types of the condition. I have not been given any specific type. Here`s a brief run down of my symptoms;
no mobility at all, but can weightbear a little. been a full time wheelchair user for 8 years.
spasms are mostly controlled with baclofen
nerve pain is controlled by amitriptyline
bladder urgency is partly controlled by oxybutynin
What do you and I have in common and how long have you had these problems?