Originally Posted by uncledave
I was diagnosed with MG about 6 months ago. I'm still in the process of determining my proper dosage of Mestinon. My neuro told me to experiment, so here goes. One of my main symptoms has been an inability to walk any distance without having to sit down and rest a little before continuing. I had started using a wheelchair for shopping. Starting on 1/2 tablet 4 times a day helped my walking quite a bit. Now I am on 1tab, 1/2 tab, 1 tab, 1/2 tab each day. This helps even more. Two days ago I experimented and took 2 tablets at once. There was a BIG improvement in my symptoms. Not only could a walk a longer distance but I felt ENERGISED! I walked energetically! I walked so much that my calf muscles are still somewhat sore. I can understand how the Mestinon improves strength, but my question is do any of you also experience a surge of energy with the correct dosage?
Your post is very interesting to me. I am a new member and I could not find out how to post so I am just butting into your post and hope you understand.
I am in the process of being evaluated for MG and I am anxiously waiting for the blood tests results. I have the same walking symptoms you have. I have been using a walker with a seat so that I can sit when I need to. Any advice you can give me about how to navigate this site will be a big help! Have you previously posted about how your symptoms began and the course of your being diagnosed? Thank you so much. Alle Wood