Originally Posted by Nan Cyclist
As long as you're not taking any meds yet, would you consider signing up for the Michael J Fox PPMI study? If so, just go to the MJFF website and follow the prompts.
Nan, I am considering it and find one thing that keeps me from it so far: I wouldnt mind the expense of getting to the nearest facility (Houston) or having to use up personal leave from work or donating blood or going into mri tubes. What I would mind is giving spinal fluid--even for the team. The thought of a needle in my spine is very off-putting. I may yet change my mind, but each time I visit the PPMI part of the website and feel ready to do it (heck, they might not even want me), that needle in the back makes me think twice. If anyone else has a different view on this or has gone through spinall fluid collection and finds it not that bad----please let me know---I have never had it done and am probably speaking more out of ignorance than reason.