I thought this thread would be an appropriate place to stop by and write just a few sentences…..
It was only a month or so since I posted on this site….Yet it feels like an entire year
has passed since then
My biggest problem these days is finding enough time
- Rather than finding enough energy
This has been a long process…..and this is far
from what we/any of us expected.
Although I am confident and secure about my experiences I no longer feel it appropriate to write about them on a regular basis on this forum, especially when they no longer match anyone else´s.....(although I mirror and can relate to most of the myasthenic experiences that people write about here. The slow progressive remission of my own symptoms, and my own descriptions of them may only serve to give false hope to others especially
when my own tests have turned out negative for MG (except to Mestinon which worked on symptoms - but I no longer have a need for)
And anyway, going into a remission (of whichever
type) brings a whole new set of questions, unfamiliar issues and dialogue to the family table.
I must be the happiest person alive
Even all my bad posture habits are returning - and I am so grateful I have muscle strength to even resume them all over again without medication or even the vaguest contemplation of exercise! During a 5 year period, fluctuating muscle weakness reached a peak and then confusingly continued to spread to other myasthenic muscle sets but with gradually lessening intensity
of symptoms themselves.
I was very fortunate to pass by this forum on the tail end of a remission that was by no means clear cut and was able to process most of those experiences involving the muscles over many years. I am extremely confident and secure of what I have been through now - yet at the same time I cannot
believe that I am the one, for a change, looking around and observing healthy
people and those younger
than myself - struggling to keep up with a busy schedule while I have stamina enough to keep on going
I also realized this is the first time I do not even need a doctor – Forget
humbly accept and appreciate this unusual position….
Thinking of you all......a lot