Laura, perhaps Parkinson's movement might have something to offer you, or vice versa, there are YO people there with drive and a real will to make things happen globally, and perhaps this is an energy that could be tapped into. There are certainly people your age, creative and capable, and perhaps short video could be a place to start. Your posts are always so full of life and ideas, hope you are finding some of these people and making the connections you need.
You have a strong voice, much appreciated, and a will to see this stuff happen.
Don't ever get disheartened, there is always tomorrow, and another attempt at getting the world to take a fresh look at PD.
Olsen, I too found it hard to read your story, this should not be happening. I have a real belief in medicine being there for the patient when they need it, and know that the reality is often very far from that.