Originally Posted by Southern Bell
Tracy I also have another rare autoimmune illness and have tried 5 or 6 rounds of IVIG (at this point I can't remember) and one round (12 sections) of plasmapharisis and neither did any benefit to correct any of my symptoms. I truly wish I didn't have to go the prednisone route because of the side effects but I had to do something to correct the double vision.
I have to take so many different drugs to help me function and I know all of them have side effects, but I don't know any other way. I know my immune system is very comprimised but I have learned that one thing that helps has severe effects on my body. It's a no win situation. I'm glad you have found a good solution to help you. I also hope backwardpawn can do the same.
How's your SPS doing lately (better, hopefully)? It really is a no win situation, though. I got such a boost from the Prednisone that I though I could cut back the benzos. Even just half a pill and now I can barely walk
It has me a little worried that this may be another short term solution. I'll guess I keep everything the same until Mayo now and see what they say and hopefully this lasts that long.
I guess the silver lining is that by just skipping half a pill the doctor at Mayo will be able to see whats going on and, at least for now, I can function.