MG Hit hard today

[southblues]

I have been diagnosed for about a year but I have had the problem to some degree for 2 years. I hope that it won't get worse. I would like to hear people's opinion on that as well. I usually can get by; I am not sure how I can get a lot worse and still work.

[FREDH]

Originally Posted by southblues

I have been diagnosed for about a year but I have had the problem to some degree for 2 years. I hope that it won't get worse. I would like to hear people's opinion on that as well. I usually can get by; I am not sure how I can get a lot worse and still work.

I have read several places, that usually your worst problems with MG are in the first 3 o4r 4 years. I certainly hope that is correct, because my symptoms, at this point are not too bad. However, I dont think that is set in stone. I had problems with speech, chewing, and eyes dropping. Mestinon has mostly controlled all of that. I am having some eye problems right now, but I think that is related to cedar allergies that San Antonio, tx. has this time of the year. Cedar affectes everyones eyes to some degree.
I was like you, diagnosed about 7 mos ago, but have had it for about 3-4 years. Just no one could find it.
Best of luck and hope it doesn't get worse.

FREDH

[StephC]

Celeste, fred

Doyou think your symptoms have been same severity since onset pre-diagnosis or do you think your symptoms have gotten worse since time you think of as when symptoms started?

[southblues]

Some of my symptoms are similar. The eyes may be a bit worse.

I actually think that my leg weakness is better.

I was falling frequently. I fell down a flight of stairs in Macon and ended up in the ER about 1 1/2 years ago. I just could not figure out why I fell. I was just walking along, and then I was flying down the stairs. The ER doctor was trying to be accusatory toward my husband which was WAY off base.

I didn't notice the leg weakness until I hit the dirt. I would be walking along happily and then I would be down. That does not happen any more. The mestinon most likely helps. I also pay attention to my legs if they feel weird now.

Overall, I don't think I am really getting worse now. At least I hope not.