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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

Feeling a bit desperate. Looking into alternative medicine...

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Old 05-20-2012, 04:13 PM   #11
Jeffrey
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2 visits & $150 later, B. Therapy didn't do anything for me.

Glad it helped someone else.

I can check off that, chiro, and accupuncture from my list of things to try.

Neurofeedback and Neuro Cranial Reconstruction are the my two possibilities, besides time. And they're the most expensive, I believe.

They might not do anything either. You don't always get what you pay for.

That's the tricky thing about medicine. Every body & brain is different, so nothing might help. Maybe a miracle will happen someday and info on healing nerve pain in the roof of the mouth after a TBI will show up.

Maybe a moderator knows.

Take care.
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Old 05-20-2012, 04:32 PM   #12
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While Epley might help...they say there are specialist who do this and are trained.

as for my case I can tell you So many people suggested this, but the ENT told me I was not a candidate as it is not related to PCS. My specially trained PT assessed me twice, and she said I do not have the dislodged crystals. Because of the PT I am going to be going to a head and neck specialist.

sorry if it sounds like I am a downer....not trying to be as Mark you have a great deal of knowledge and I am taking a lot of your ideas with me tomorrow to my workers comp dr...who cannot get why I am still unable to function.
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Old 05-20-2012, 04:50 PM   #13
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For those who can't afford an Epley therapist for diagnostics, a do it yourself try may be helpful. For the desperate person without funds, it's worth a try. I would not consider an off-hand comment that it will not help to be valid. A diagnostic and comment that it will not help is needed. If it works, the benefit is like a night and day difference.
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58 years old, retired due to disability, married 33 years, father of three, grandfather of four, Suffered a serious concussion at 10 years old (1965) stopped most driving after last concussion at 46 years old (2001), Post Concussion Syndrome/Multiple Concussion/Impact Syndrome with PTSD, immediate and short term visual and auditory memory problems, slowed processing speed, visual and auditory processing difficulties, insomnia, absence seizures, OCD, 14 concussions since first concussion at 8 years old, Taking paroxetine and gabapentin for 12 years. Added L-Tryptophan and reduced paroxetine by half 3/2013

"Be Still and Know That I am God" Psalm 46:10

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Old 05-20-2012, 04:51 PM   #14
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Wink PT assessment

I had an assessment done by the PT on an expensive machine...I think they cal it the Balance Master...probably the wrong name, but it assess in several areas and my results in January were not great and my overall score was 66. The same test was done three months later and except for vestibular the results showed some improvement but I still got an overall score of 66. I have been told that Wii Fit has a similar tool for the training for improving balance, so my husband got it and now we have to set it up....if only my grandkids lived next door they would show me...but they have not been by recently. Anyway, I will let you know how I improve
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Old 05-20-2012, 04:53 PM   #15
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you are right it is worth the effort...
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Old 05-20-2012, 05:13 PM   #16
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The Epley Omniax Chair sounds very worthwhile if you can find a clinic that has it.
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58 years old, retired due to disability, married 33 years, father of three, grandfather of four, Suffered a serious concussion at 10 years old (1965) stopped most driving after last concussion at 46 years old (2001), Post Concussion Syndrome/Multiple Concussion/Impact Syndrome with PTSD, immediate and short term visual and auditory memory problems, slowed processing speed, visual and auditory processing difficulties, insomnia, absence seizures, OCD, 14 concussions since first concussion at 8 years old, Taking paroxetine and gabapentin for 12 years. Added L-Tryptophan and reduced paroxetine by half 3/2013

"Be Still and Know That I am God" Psalm 46:10
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Old 05-21-2012, 04:59 PM   #17
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If you are looking into lifestyle remedies, be sure to check out Dr. Nedley's materials. He is oriented toward depression, but his stuff is all based around brain health and it did a TON to help my post-concussive symptoms as well as my depression. My headaches have been gone since going through his residential program.

http://www.drnedley.com
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38-yo female with mTBI and PCS after sledding accident 1-17-2011

Was experiencing:
Persistent headaches, fatigue, slowed cognitive functions, depression
Symptoms exacerbated by being in a crowd, watching TV, driving, other miscellaneous stress & sensory overload
Sciatica/piriformis syndrome with numbness & loss of reflex


Largely recovered after participating in Nedley Depression Recovery Program March 2012:

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Eowyn Rides Again: My Journey Back from Concussion

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Old 05-22-2012, 01:18 PM   #18
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Hi Cheryl, in regards to your TBI, I have seen some very good recommendations here. my summary of things that would 'assist' but not cure the symptoms of the TBI include going the direction of natural with inclusion of prescription meds where needed to direct you towards balance and recovery. Fish oil (neurological +), B-12 & B-complexes (neurological +), N-Acetyl Cysteine (cysteine vs. carniteine to neurologically act as a free radical cleaner), organic veggies continued, magnesium (headaches/cramping/depression) and Do Not forget to take a mineral supplement (vitamins naturally require minerals in order to function/benefit the natural body). The recommendations for personal therapy can be assisted by the resources available to you-yoga, meditation, spirituallity all improve cognition, mental health resulting in better physical health. You have to make the decision/time to invest in those for a good return on their investment.
Every little bit helps you re-balance.


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