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Stuttering

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Old 02-18-2013, 06:31 PM   #11
cyclecrash
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That sounds horribly frustrating msRrio! I have it where i can't think of words and stutter a little when stressed or having a bad day but not like that.

I don't understand why doctors or people don't believe us or our symptoms but yet we all have the same ones! Each of us has our own unique grouping of issues but most of the main symptoms are very common. How can we all be making it up/exaggerating/lying?

Its obviously real.

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I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world.

Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances.

Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident.

The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful!

My brain WANTS to heal itself... I just have to let it and stop trying to get better!
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Old 02-18-2013, 07:25 PM   #12
Mark in Idaho
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MsRrio,

You might ask your doctor for a prescription of an anti-seizure med. Neurontin (gabapentin) or some of the old standbys like phenobarbital or phenytoin (Dilantin). I was on both in high school (1971-2) and they settled my brain down. It sounds like your brain gets caught struggling and loses control of the timing processes needed to control a natural flow of information and speech.

The added stress of your son's struggles likely makes this brain stress much worse.

My best to you.
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58 years old, retired due to disability, married 33 years, father of three, grandfather of four, Suffered a serious concussion at 10 years old (1965) stopped most driving after last concussion at 46 years old (2001), Post Concussion Syndrome/Multiple Concussion/Impact Syndrome with PTSD, immediate and short term visual and auditory memory problems, slowed processing speed, visual and auditory processing difficulties, insomnia, absence seizures, OCD, 14 concussions since first concussion at 8 years old, Taking paroxetine and gabapentin for 12 years. Added L-Tryptophan and reduced paroxetine by half 3/2013

"Be Still and Know That I am God" Psalm 46:10
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Old 02-20-2013, 09:02 PM   #13
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Default Speech problems

Ms rio,
I have major speech slurring and some stuttering or like a shaky voice when I get real nervous. Looks like it is normal for all of us. No worries. I know it is embarrassing though.
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Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg.
Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.)
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Old 02-20-2013, 10:20 PM   #14
MsRriO
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Quote:
Originally Posted by Mark in Idaho View Post
MsRrio,

You might ask your doctor for a prescription of an anti-seizure med. Neurontin (gabapentin) or some of the old standbys like phenobarbital or phenytoin (Dilantin). I was on both in high school (1971-2) and they settled my brain down. It sounds like your brain gets caught struggling and loses control of the timing processes needed to control a natural flow of information and speech.

The added stress of your son's struggles likely makes this brain stress much worse.

My best to you.

Thanks Mark. I'm interested in what you think of the other symptom that accompanies the stutter sometimes. It's a very strong pressure in the middle of my forehead, sort of down into my sinuses almost, like a strong painful pulling sensation.

Wondering if this is related or just concurrent pain from trying to process speech. Probably just coincidence?

You're right about stress. The week since the neuro psych day has been torturous and a very disheartening setback. I feel consistently worse than I did even at two months post injury. Month three and four have sucked.

Next appt to see GP is Friday, will bring up meds again. Will try to remember.
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About it: October 26, 2012 I fell backward on an icy parking lot. My PCS at 6 months: variable head and neck pain, occasional mild dizziness, fullness in the head, ears, and sinuses, convergence insufficiency, diminishing light and noise sensitivity, sequencing struggles, short term memory struggles, verbal processing delays. CT neg, MRI neg. Therapies: prism glasses, acupuncture, icing neck, resting, supplementing, Elavil 20mg at bedtime. NEW: Beginning intense 4 hour physical therapy DAILY (for Return to Work plan) for 10 weeks!
About me:I'm off work on workers comp coverage, from my career as marketing manager. I am a mom, and wife to a heart attack survivor.
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Old 02-21-2013, 10:55 PM   #15
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My speech therapist specializes in traumatic brain injury. When I first started the therapy, she said that I should expect to have more problems when I am stressed, tired, or under cognitive strain. Being relaxed, explaining something that I have said repeatedly (like how the injury happened) made my speech almost like it was before the accident.

I was really amazed at how much the speech therapy really helped. The breathing techniques and learning transitions from one syllable to another and easy onset of words made a huge difference. After a while I was able to self-correct. Now, unless I am exhausted or have not planned what I want to say, no one suspects that I ever had a stutter.

I wouldn't be concerned if the neurologist is not familiar with this, but your speech therapist says something different, I would look for a new speech therapist -- one with experience treating patients with TBI.
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Old 02-21-2013, 10:58 PM   #16
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By the way, I found that "trying harder" almost always made the stuttering worse. Learning to relax and learning the techniques to deal with the aspects of speech I found difficult were key to getting past the stuttering.
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