Oh wow I have missed so much going on with the forum and your thread Marc! I had no idea you went back for surgery. I hope you are doing well and this works this time around I really really do, you have always been an inspiration to me.
I am about to update my own thread, it looks like more surgery is in the near future for me as well, and there is a good chance I will be coming to your area as I want to meet with Dr. Angle.
I hope you don't have to be on Valium indefinitely, that is what I've been told too since my first surgery and when I tried to get off that and Norco I had insane withdrawal symptoms.
Also, Are you sure your other symptoms are AC joint bursitis? My newest physiatrist believed I have the same issue and gave me 4 cortisone injections on each shoulder and they made all of my symptoms much worse...please tread carefully! What made you decide to go with Botox for the occipital neuralgia?
Originally Posted by nospam
I have tapered down to 2.5 mg of Percocet 3/day and hope to be off of it soon (I had withdrawl symptoms last time I titrated off too quickly). I am still dependent on Valium to keep my SCM tension and occipital headaches under control.
I'm confident that the majority of my remaining post-surgical pain is rotator cuff: AC joint bursitis & supraspinatus tendinitis (icing and ultrasound/TENS combo have helped greatly). I hope to get AC joint cortisone injections for the bursitis/tendinitis next week. I am scheduled for Botox in two weeks: occipital headache protocol plus SCM dystonia protocol (not EMG-guided).
If the Botox doesn't work, I may be looking at being on Valium indefinitely.