Originally Posted by ShelbyG
Thank you Nanc! It was a relief hearing from someone that this worked for. I realize that this isn't going to be an "easy" fix per se and that I will have a lot of tweaking to get things right, but for me, living at a 10/10 every day and not being able to function in the least little bit helps me feel confident that I'm making the right choice. I truly appreciate you sharing with me!
Happy to share with you! You know you have to make your own decisions and choices. And everyone has their own opinions and experiences that are certainly worth hearing about, that helps in making those choices easier. But there are good results from the SCS that should be heard. If it was so horrible, they would be off the market! I researched and thought long and hard before I got mine. It truly was the last resort for me and luckily I have insurance coverage. You and your healthcare provider have to be comfortable with your choices, and you have to be comfortable with him/her.
I read the good stories and the bad stories of its use for RSD/CRPS before I made my choice. I would do it again as I have regained the use of hands. As I said before, I am not pain-free but I can use my hands again. St Jude told me that they shoot for at least 50% pain reduction, if you go from a 10 to a 5, that's huge!! If I am a 6/7 today instead of a 10 in my hands and I can do my job, I am doing great!
I had my first set of injections Tuesday in my lower left back and right hip and they helped, so I think we are on the right path to getting the thoracic SCS working better now too
Wishing you all the best,