Go Back   NeuroTalk Support Groups > General > New Member Introductions

New Member Introductions Welcome to our community! Come in and introduce yourself to other members!!

Myoclonus and vitamin deficiencies

Reply
Thread Tools Display Modes
Unread 12-15-2009, 07:31 PM   #1
Amy Jo
New Member
 
Join Date: Dec 2009
Posts: 2
Default Myoclonus and vitamin deficiencies

I am glad to be here. I have a two and a half year history. I started off twitching pretty hard at night when trying to fall asleep. The first neuro I saw to me he could give me meds for Restless Leg Syndrome, and I should take a Yoga class. I have since been to Internists, Endocrinologists, 2 more Neurologist, etc. Symptoms have included stimulus sensitive myoclonus, fatigue, sleep disturbances, shortness of breath, tachycardia, loss of speech, itching and numbness and tingling sensations, low body temp, hair loss, irregular menstruation, etc. I have been to Cleavland Clinic, myoclonus is non epileptic. All of my labs have allways come back normal, with a couple of small exceptions, slightly high cholesterol, low aldosterone, low carbon dioxide. A month ago I was speaking to a friend who was asking me about my triggers for the myoclonus. I told him the long list, and told him how much better I felt when in the sun. He told me I should take vitamin D...so I did some research...Started taking 3,000IU per day. The very first night, I did not have any twitching. I did not need any Ativan that night. I have since found out that vitamin B is low, within normal range at 300, but low enough to still have an effect too.. I am so excited to finally be getting some answers instead of doctors pointing fingers at me telling me to take Yoga!
Amy Jo is offline   Reply With Quote
"Thanks for this!" says:
tamiloo (12-17-2009)
Unread 12-16-2009, 01:14 PM   #2
azoyizes
Magnate
 
azoyizes's Avatar
 
Join Date: Sep 2006
Location: Salem, VA
Posts: 2,195
Default

Welcome to Neurotalk, Amy Jo! I'm so glad you found us!!

This is such a great place with lots of caring, friendly, and helpful people. Feel free to jump in anywhere it suits you.

This is link for the Medication forum, where you may find some answers:

http://neurotalk.psychcentral.com/forum72.html

Otherwise, look around at the different forums. I wish you all the best.
__________________
Mair


.
azoyizes is offline   Reply With Quote
"Thanks for this!" says:
tamiloo (12-17-2009)
Unread 12-17-2009, 01:08 PM   #3
tamiloo
Grand Magnate
 
tamiloo's Avatar
 
Join Date: Oct 2006
Location: Northern Utah
Posts: 3,437
My Mood:
Default

Welcome Amy Jo! I have a niece with the same name!

Neuro Talk is the best place to be if you have unanswered questions...feel free to check in anywhere you want!!


__________________
My best friends live in my computer....
.
Suffered with back problems since birth...6 back surgeries to date, the last one being on 11/2/11. Fibromyalgia, PTSD, Chronic Pain

“Being my sweethearts full-time care partner, I have to remind myself, when some well-meaning friend or relative questions my methods or motives, that I know more than they do because I Live this life 24/7, and they only come for short visits.” Tamiloo


.
Gotta love my Olhipie! Dx'd RRMS 1986, SPMS 2004

.
Watch my Olhipie Skiing....

.

.
Our Lovely Lola...yes she is a lovable Pitt!
tamiloo is offline   Reply With Quote
Unread 12-20-2009, 03:39 PM   #4
michael178
Member
 
Join Date: Mar 2007
Location: south dakota
Posts: 225
My Mood:
Default

Chris,
I have had similar jerking for years, and hsve also been told that they did not indicate an underlying problem that they normally occur when going to sleep. Normally I would also hiccup once in addition to random body jerks. Later, I had the hiccups from early evening until late afternoon the next day. When I told my neuros about this, they said there were too many causes for hiccups, and my condition was not worth investigating.
Well, of course it wasn't worth their time, they were not hiccuping. Eventually, the jerking and hiccups went away. I take a number of antiseizure meds, and I guess they now prevent the jerks (no, i not referring to the neurologists I saw, even though they were jerks.)
Like most neurological problems, you hve to keep seeing a new before you get help.
I spent eight years tracking down my disease, cadasil, which affects 400 families worldwide. I have never been to a doctor who has treated someone with cadasil before, but maybe that was fortunate for me, who knows. My seizure problems were solved after a year of falling...it ended up being a blood pressure problem.....not being able to pump enough blood to my brain due to damage to valves from diabetes I think.
At any rate, given the severity of the symptoms I have, from vascular dementia, to peripheral nerve damage, and so on, I ignore the minor problems my body has, and would suggest you do the same thing. Or try to, at least; you never know what is coming next.
michael178 is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Myoclonus walker604 Movement Disorders 31 04-29-2014 04:51 AM
Does anyone have SPINAL MYOCLONUS or PALATAL MYOCLONUS? Topsie Movement Disorders 24 04-29-2014 04:46 AM
Experiences with Vitamin Depletions/Deficiencies west1 Vitamins, Nutrients, Herbs and Supplements 41 01-03-2013 10:22 AM
Spinal Myoclonus and Palatal Myoclonus??? Topsie Reflex Sympathetic Dystrophy (RSD and CRPS) 15 06-16-2011 04:42 PM
Possible myoclonus?? deadlysauce Movement Disorders 6 02-21-2009 01:51 AM


All times are GMT -5. The time now is 08:39 PM.
Brought to you by the fine folks who publish mental health and psychology information at Psych Central • Mental Health Forums

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.


Powered by vBulletin • Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.


All posts copyright their original authors • Community Guidelines • Terms of Use • Privacy Policy
NeuroTalk Archives