Originally Posted by MarissaLB
Thought I might find a support group but found this forum first. I am a 30 somehting female recently diagnosed with the trigem and occipitol neuralgia among other things I may have going on. The pain began at the same time I had tooth pain and root canal procedure in mid august. I have am exhausted with the pain. I had nerve blockers last week to no avail. I am consumed with the chiro, PT, Medications x-rays etc etc etc. I am a wimp ! I am so thankful not to have a termial illness of any sort but @ the same token i am losing my mind to this pain and emotional tole I am going through. Everytime I do get som pain killers that work I have to play catch up on my home.... dishes family, laundry, housework etc. ( iam a homemaker husband ... 2 kids ... dog and hamster) I am used to a busy lifestyle.... going, doing , participating, LIVING ! I ahve no real quality of life much anymore. I am also only @ the six month marker and I know that i have quite a way to go fom here.
Hopefully this forum will give me the outlet to vent to people who understand and a place for me to share in the experinces of others.
I was diagnosed with Trigeminal and Occipital Neuralgia 2 years ago while I had an infected tooth and a root canal procedure done!!!
Oh my goodness!!! My neurologist said there is no way that a tooth nerve could've caused Occipital Neuralgia! But that is when all of my pain started!!
I had a headache for 52 days straight!! I was put on numerous pain killers and nerve medications and nothing worked. The only thing that works is muscle relaxers. My doctor said I have so much tension in my neck, that the tight muscles are squeezing the Occipital Nerve and making it angry.
I also follow these strict rules from my Neurologist to not upset the Occipital Nerve: don't wear any hats or headbands, don't lay flat on your head (turn your head sideways when you are laying down), don't put any pressure on the base of your skull and don't wear heavy clothing on the base of your neck (like a heavy courdouroy blazer or a heavy coat).
When my head starts hurting I take a muscle relaxer, I wear a magnet necklace, go for a walk, put ice packs or heat packs on the base of my skull. Putting the ice or heat packs on your neck relaxes the muscles that are surrounding the Occipital Nerve.
I'm sad for your pain, I am a mother of two also and this has changed my life drastically! I hope you feel relief soon.