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Parkinson's Disease Tulip

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Old 08-21-2007, 06:26 PM   #21
tonyd92236
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Default reporting adverse experiences to FDA
As a consumer/patient, you can report an adverse experience that you have directly to FDA. You don't have to rely on your physician.

For approved/marketed drugs: http://www.fda.gov/medwatch/index.html This uses a simple form that you can fill in and send electronically.

For investigational drugs: http://www.fda.gov/oc/gcp/. This site gives you phone numbers that you can use.

In either event, your report will be directed to the appropriate FDA review division.

Tony
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Old 08-29-2007, 03:04 PM   #22
harley
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Default chatrooms
parkinsonschitchat/parkiejam..

http://health.groups.yahoo.com/group...nsonschitchat/


parkinsonsprofile..

http://parkinsonprofile.com/

yopa

http://www.yopa.org/page/page/1702945.htm'

edgeoftheforest

http://edgeoftheforest.com/
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I have Parkinson's Disease, Parkinson's Disease does NOT have me!
Last edited by Curious; 09-12-2007 at 10:13 AM. Reason: fixed broken link :)
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Old 09-06-2007, 01:03 PM   #23
gaykir
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Thumbs up Free excercise in Dallas/Collin Counties
Here's a wonderful resource for anyone in the greater Dallas TX or Collin County areas:

http://www.daps.us/

The free excercise-speech and Caregiver groups schedules

http://www.daps.us/therapy.html
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Curious (08-24-2008)
Old 09-07-2007, 06:37 PM   #24
harley
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Default dopamine and other neurotransmitters
extremely informative:

http://bprayer0.tripod.com/bprayer/dopamine.html
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Old 11-09-2007, 11:57 AM   #25
harley
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Default parkiejam forum up in yahoo
http://health.groups.yahoo.com/group/Parkiejam/
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Old 11-18-2007, 10:14 AM   #26
olsen
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Default mitochondrial function/dysfunction references
--------------------------------------------------------------------------------

http://tinyurl.com/2ttnpd

http://www.mitochondrial.net/showabs...rce=newsletter

http://tinyurl.com/2u68pz


http://www.mitochondrial.net/showabs...rce=newsletter
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In the last analysis, we see only what we are ready to see, what we have been taught to see. We eliminate and ignore everything that is not a part of our prejudices.

~ Jean-Martin Charcot

If you are not part of the solution, you are part of the precipitate. Steven Wright
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Old 04-13-2008, 08:44 AM   #27
Parkie Patty
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Default Inspirational Book Surviving Adversity living w/PD
A very good inspirational book about 28 different individuals with PD from all walks of life Surviving Adversity living with Parkinson's Disease. The author's mother has PD. A portion of the proceeds goes to PD research. Very very inspiring for not only those newly diagnosed but those who have been diagnosed for years. This book will provide readers with perspective and hope. "Surviving Adversity living with Parkinon's disease" Author: Gord Carley
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Old 05-29-2008, 11:18 AM   #28
myparkinsons
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Default Daily Parkinson's Information
I've been involved with a lot of research and I compile it daily (at least Monday through Friday) considering that the research world changes so fast. You can find my daily research and thoughts at http://myparkinsonsinformation.com/
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Old 08-04-2008, 10:50 AM   #29
jeanb
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Default Spanish Info Website
Here is an amazing website from Barcelona, Spain.

Their goal is to cross boundaries in fighting PD. They have both English & Spanish.

(Spanish)
http://unidoscontraelparkinson.es/default.htm

(English)
http://unidoscontraelparkinson.es/en/default_en.htm
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"Do not confuse motion and progress. A rocking horse keeps moving but does not make any progress." Albert A. Montapert

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...
.
 ... "...if you get a chance, talk to a patient" ... MJ Fox at the 2006 WPC
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Old 08-23-2008, 09:24 PM   #30
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Default Book: Monkeys in the Middle, A "Miracle" Drug Kept Out of Reach
New Website for this important book:

http://monkeysinthemiddle.com/

A "Miracle" Drug Kept Out of Reach

Including:
GDNF Videos Featuring Actual Patients featured in "Monkeys in the Middle"

Additionally, if you don't care to read the book, you can find the complete history of the GDNF halted trial can be found here: GDNF - glial cell line-derieved neurotrophic factor
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You're alive. Do something. The directive in life, the moral imperative was so uncomplicated. It could be expressed in single words, not complete sentences. It sounded like this: Look. Listen. Choose. Act. ~~Barbara Hall

I long to accomplish a great and noble tasks, but it is my chief duty to accomplish humble tasks as though they were great and noble. The world is moved along, not only by the mighty shoves of its heroes, but also by the aggregate of the tiny pushes of each honest worker. ~~Helen Keller
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