Oh boy do I know what you're talking about. This nerve pain is awful, as well as the DEEP bone type pain ~ the pain that seems to go straight to your soul!!! Yes, I know what you mean. it's the kind of pain that is hard to describe.
I'm so sorry you're suffering so. One nerve medication that has helped me some is TOPAMAX. It has helped with the burning, hot-poker, water-running type pain. It's really been great. Now if it could help with the horrible PAIN, that would be wonderful!!! I was just thinking that perhaps Topamax could help you. I haven't had any side effects from it, but some people might.
Like you, I can't walk much of a distance. Sitting is a new experience in pain. Laying down isn't much better because I have "sore spots" on the back that when I lay down, it just aggravates things. Maybe I should just hang from the ceiling??? lol.
I'm going on Friday (tomorrow) for yet another MRI, as I'm almost sure I've herniated another disc. I now have sciatica in both lets instead of the right one that i've had it in for the last 24 years. Don't really know why he's doing the MRI cause I can't have more surgery ~ doc's say i'm inoperable.
So between the two of us Kalikage, we couldn't even make ONE GOOD SPINE. LOL. God bless and take care. Hugs, Lee
recovering alcoholic, sober since 7-29-93;severe depression; 2 open spinal surgeries; severe sciatica since 1986; epidurals; trigger points; myelograms; Rhizotomy; Racz procedure; spinal cord stimulator implant (and later removal); morphine pump trial (didn't work);now inoperable; lumpectomy; radiation; breast cancer survivor; heart attack; fibromyalgia; on disability.
Often the test of courage is not to die, but to live..