Have you ever tried natural nutritional plus Yogic support for muscle weakness/ fatigue or sensory loss. ? I am writing to inform me that Sprouted Mung ( Phaseolus aureus), Chana, Methi and Ajawain seeds are recommended as a powerful breakfast in patients with neuro-muscular diseases including MG.
You should eat sprouted cereals (Mung + Chana + Methi seed + Ajawain seeds). Unlike grains that have undergone processing, sprouted grains are filled with nutritious elements. They provide the best source of vitamins and minerals. Sprouted cereals / grains actually encourage good bacteria to thrive in the body and keep the colon clean. The quantity for one person is:-
Mung Dal (Phaseolus aureus) 2 teaspoon, Chana ( Cicer arietium), 1 teaspoon, Methi (fenugreek seeds) 1/2 teaspoon, Ajwain (Trachyspermum copticum) 1/4 teaspoon; Wash and soak this mixed grains overnight ... . Next day remove the excess water and cover it. After one day you can see sprouted cereal. The seeds will germinate. Add slices of fine chopped onion, tomato, coriander, ginger + black pepper and lime juice. You can add boiled potato also and eat with proper chewing. This is followed by a glass of fresh juice from any seasonally available fruit or you can drink a glass of fresh butter milk. It is powerful breakfast for MG patients.
Sprouted seeds are excellent food for all neuro-muscular disorders. They are high in enzymes and their minerals can easily be absorbed. Easy to sprout are Mung beans, brown lentils and fenugreek. If chewing is difficult, these may be juiced as well. Yogic breathing technique and Meditation are useful in the lasting relief from debilitating symptoms of MG.
Originally Posted by Beannie
I live in a major city and am going to a great medical center - that being said, they seem to be overly distressed that I have symptoms that don't fit together in a perfect neuro disease box. In addition to the weakness/fatigue, I have occasional fasciculations in my arms and legs as well as random muscle movement that I can't control. I also have sensory loss in my hands and feet (both temperature and pain).
I've been on the mestinon for 2 days and it really seems to help. However, it only seems to last for about 5-6 hours and it kills my stomach (does that improve with time?). I tried taking a Bentyl this afternoon to deal with the crazy cramping and it totally spaced me out. Of course, that was when the neuro called to talk! She wants to order the SFEMG and a lumbar puncture. The SFEMG to be done first. What is a SFEMG? How do they do it? I've had 3 EMG's already and two with the exercise/rest electrocute my hand and neck parts. Both times I had some positive results but they decided it was due to movement and not a real decrement.
I was tested for MuSK, but not for LEMS. It's only been a week and apparently it can take up to 2 weeks for it to come back. I get the sense from the docs I've seen that they NEED a positive test to help them know what to think. On the other hand, I am grateful for every negative test I get