Originally Posted by firstname.lastname@example.org
I post on another thread, but have Tos also though has not been quite so bad. Since I had my tonscils out it seemed to make some space call me crazy but it did. I was wondering, I get head pain top of my head like a pole going through it to my cheeck. A pain doctor told me it sounded like TOS pains? I also have trigeminal neuralgia and Chronic sinusitis. Does that pain sound like TOS to anyone? I do have issues with my left side as EMG supposedly showed. Only real issues are dropping things and wierd pain in pointer finger and neck. The head pain is really what concerns me though. Thanks , Jen
Hi there! I just thought I would offer my two cents and let you know what I've been told.....
I do have major face (nerve type) pain and headaches.
My headaches sometimes are more like sore spots on top of the head to the "pole" type to full blown migraines. They have been better since I started taking Topamax for nerve pain and migraines though.
My face pain usually starts as a dull toothache like pain and then gets gradually gets to burning, stabbing, horrible pain that goes anywhere from just below the temple to the lower corner of my nose. Mostly the jaw area. This pain comes and goes with the condition of my neck and traps. I have also noticed in the colder climate that the tip of my nose goes numb and then like pins and needles....I know....it's wierd.
Another wierd thing I have noticed is that my lymphnodes are ALWAYS swollen when any of this happens too.
My neuro who dx'ed the bilateral TOS asked me if this usually occurs on both sides at the same time or if it sticks to one side at a time. (Mine is on 1 side or the other, never both at the same time) He said that it probably was Tos. He also asked if my eye on the same side got really bloodshot. I didn't know at the time but have noticed since then that it does. When he gave me my scalene block, I was having a really bad time with it and the block took it away completly, for the day.... (I also had my neck looked at and besides having a reversed curve, I have no disc problems) Again, I think the Topamax has helped with this too. Also heat or ice will help depending on the day for me.
OH and someone had postd a pic of trigger spots in the back, (maybe someone still has this) If I have someone press on the right one, it's right on the inside of my shoulder blade and about 3" down from the shoulder, it goes away temperarally.
For a while I thought it might be a tooth problem but I have had all the problem teeth dealt with now and still am left with this pain.
My W/C ortho told me it was probably Trimengial Neuralgia. No tests, no other questions....
Hopefully this helps a little. Mine can get really horrible and I hate to hear that anyone else is dealing with this. If you have any other ??? I will try to help out, this is all I could remember at this point. LOL!
Wishing you a painfree day,