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pin pricks, electric like sensations all over

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Unread 09-26-2010, 07:59 PM   #1
invisable
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Default pin pricks, electric like sensations all over

ok, I'll try here.......I have also appeared (even though I am invisable) in the Fibromyalgia postings. Had no responses. I have pin prick sensations all over my body at different times, thousands of times a day. Also have water feelings and buzzing on legs and feet at times. Have had every test known to man. The neuro said I do not have neuropathy because I have no sensation loss, only "positive" sensations. Well, they are not positive in my book, I feel like I am going to lose it!!! I am on 900 mg. of Gabapentin a day, it worked for the last year, but lately I am having more breakthroughs.
The neuro basically told me he has no dx. for me, he said he sees people like me about once a year (I feel like a freak of nature.)

I am a 52 year old female.

Does anyone have or know anyone with this or even have any ideas on what this could be??

Please, I could use some encouragement feeling glad I don't have a serious dx. but very upset to have to deal with this 24/7.

P.S. Also get a lot of muscle twitching (not cramps), just twitching!
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Unread 09-27-2010, 10:36 AM   #2
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Hi "Invisable" ~

Jeepers ~ how frustrating! I get all those things too, but I have a diagnosis!

Have you had an MRI of your spine? If so, can you read it to us? Do you have one of the cervical or the lumbar? Or both? If you DON'T have an MRI, you should have one done, with and without contrast material.

I'd be interested in seeing what it says, if you have one. Thanks alot. Hugs, Lee
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recovering alcoholic, sober since 7-29-93;severe depression; 2 open spinal surgeries; severe sciatica since 1986; epidurals; trigger points; myelograms; Rhizotomy; Racz procedure; spinal cord stimulator implant (and later removal); morphine pump trial (didn't work);now inoperable; lumpectomy; radiation; breast cancer survivor; heart attack; fibromyalgia; on disability.



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Unread 09-27-2010, 03:03 PM   #3
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Hi "Invisable" ~

Jeepers ~ how frustrating! I get all those things too, but I have a diagnosis!

Have you had an MRI of your spine? If so, can you read it to us? Do you have one of the cervical or the lumbar? Or both? If you DON'T have an MRI, you should have one done, with and without contrast material.

I'd be interested in seeing what it says, if you have one. Thanks alot. Hugs, Lee
I did get an MRI of cervical spine and I do have a herniated disc in neck, but neuro did not feel it was related to my symptoms!!

I also got an MRI of Thorastic Spine, again nothing related to sym.

I have not gotten one done of Lumbar area of spine, I wonder if my problem is there, but would I have symptoms above that region or just below?

Would you mind sharing your exact symptoms with me and your dx? If not, I understand.
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Unread 09-28-2010, 04:15 PM   #4
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i have degenerative disk disease, scoliosis, lordosis, herniated disk, osteoarthritis, osteoporosis, severe sciatica (permanent) and peripheral neuropathy. LOL My right leg/foot twitches, stings, burns, feels like there's water running down it, and is numb at the same time if that makes any sense. Plus there is severe pain. Now I KNOW that doesn't make sense, since it feels numb, but there it is. The pain feels like it goes all the way to the bone. My doc just switched my med to the fentanyl patch and I'm not doing so hot. I think he and I need to "talk." LOL

I don't mind telling what I have - my life is an open book! Hugs, Lee
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recovering alcoholic, sober since 7-29-93;severe depression; 2 open spinal surgeries; severe sciatica since 1986; epidurals; trigger points; myelograms; Rhizotomy; Racz procedure; spinal cord stimulator implant (and later removal); morphine pump trial (didn't work);now inoperable; lumpectomy; radiation; breast cancer survivor; heart attack; fibromyalgia; on disability.



Often the test of courage is not to die, but to live..
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Unread 09-28-2010, 11:11 PM   #5
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Quote:
Originally Posted by Leesa View Post
i have degenerative disk disease, scoliosis, lordosis, herniated disk, osteoarthritis, osteoporosis, severe sciatica (permanent) and peripheral neuropathy. LOL My right leg/foot twitches, stings, burns, feels like there's water running down it, and is numb at the same time if that makes any sense. Plus there is severe pain. Now I KNOW that doesn't make sense, since it feels numb, but there it is. The pain feels like it goes all the way to the bone. My doc just switched my med to the fentanyl patch and I'm not doing so hot. I think he and I need to "talk." LOL

I don't mind telling what I have - my life is an open book! Hugs, Lee
I totally understand all your descriptions, I have much of the same combinations. Sometimes I can't even believe I am really feeling all these things at once. Mine is more concentrated in legs and arms, hands & feet, but every so ofter I get a prick, jab, twitch, sting or burn somewhere else. Never know where at any given moment, makes life very interesting, never a dull moment, I feel like an electrical cord! If I don't joke about it, I will scream & cry......

I just went to another neuro today......he wants me to get a skin biopsy, thinks I may have non-length dependent peripheral neuropathy. I have heard of neuropathy that people have just in feet and hands and sometimes cannot stand sox or shoes or bedsheets touching their feet. What does someone do with it all over body? I may have to join a nudest colony!! There I go joking again.......so I don't cry!!!

How progressive is neuropathy, I wonder........
Mine seems to be getting worse, or I am building a tolerance to this Gabapentin (900mg/day)

If this keeps up, I will be on morphine in no time!
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Unread 09-30-2010, 01:15 PM   #6
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I really don't know how progressive the neuropathy can get, but keep in mind that you can go UP in the medication A LOT MORE!!! You are on a "relatively" low dose. Personally, i don't like that medication cause it causes fluid retention - and it made ME feel "loopy." LOL I'm on Topamax, which does the same thing.

Jeez, I sure hope yours doesn't keep progressing!!! Mine is bad enough and has now spread to my other leg after 25 years. Good grief, I can't imagine having it ALL OVER!!! Bless your heart, I'll keep you in my prayers, for sure! Keep me posted on how you're doing, will you?? Big hugs, Lee
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recovering alcoholic, sober since 7-29-93;severe depression; 2 open spinal surgeries; severe sciatica since 1986; epidurals; trigger points; myelograms; Rhizotomy; Racz procedure; spinal cord stimulator implant (and later removal); morphine pump trial (didn't work);now inoperable; lumpectomy; radiation; breast cancer survivor; heart attack; fibromyalgia; on disability.



Often the test of courage is not to die, but to live..
.................................................. ...............Orestes
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Unread 09-30-2010, 01:20 PM   #7
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I had those symptoms of pin pricks, and electric type shocks on my arms. I did have herniated disks and was recently fused C3-7. I was told that these symptoms were indeed from my neck. Maybe it would be good to have another opinion. I never thought I would get relief, but I did. Good luck to you. ginnie Don't give up
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Unread 10-02-2010, 02:27 PM   #8
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Virginia ~ if you were RECENTLY fused, then INDEED get another opinion!!! There might be something associated with your fusion!! Please - get a referral to another Neurosurgeon. Something might be going on. God bless. Hugs, Lee
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recovering alcoholic, sober since 7-29-93;severe depression; 2 open spinal surgeries; severe sciatica since 1986; epidurals; trigger points; myelograms; Rhizotomy; Racz procedure; spinal cord stimulator implant (and later removal); morphine pump trial (didn't work);now inoperable; lumpectomy; radiation; breast cancer survivor; heart attack; fibromyalgia; on disability.



Often the test of courage is not to die, but to live..
.................................................. ...............Orestes
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