Originally Posted by Grammie 2 3
I found out yesterday that I was positive
as I said, I will not stop Tysabri. It would have given me peace of mind to be negative but I still feel the blessings of Tysabri for me out weigh the odds of pml... my neuro agrees.
Yesterday I had #52
I know you'll remain vigilant. You're still a trailblazer!
We don't know that having a positive or negative response makes any difference. We don't know how or when we are exposed to the JC virus. Someone could test negative now and be exposed and test positive six months from now. There may be other factors that make a person develop PML.
I hear that old TV broadcast in my head sometimes. "This is a test of the emergency broadcast system. This is only a test."
I get the stern warning at every appointment and know to report any changes in thinking, affect, vision, right or left sided weakness, etc. despite having a negative test result.
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Medical Marijuana legally 12/03/09
Negative for JC virus antibodies 09/10, 09/11
I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!