Hi, Elly. Welcome to the forum. I'm not "old" but I feel that way (age 52).
Why won't your neuro increase either the dose amount or the frequency? It may be time for a 2nd opinion. Mine recommended I take 90 mg. every three hours. But that's me.
Ah, digestion. Has anyone figured out WHY you have GI tract issues? It could be anything from celiac disease to lack of stomach acid to not a good enough gel coating due to a lack of omega 3's in your diet. Have you seen a gastroenterologist about this? Neuros are not gastros! You need to see the right specialist for the right problem.
Well, my suggestion for a "sleeping pill" is to try chia seeds a few hours before bedtime. They contain three times the amount of tryptophan that turkey does! There are a lot of other things you can do like meditation, writing things down that are on your mind before bedtime, not having a clock in the bedroom, using "white noise" like a fan, etc. A talk about this with your primary doctor is a good idea. Sleeping pills can be very bad for MG! Please try other things first.
If you are very tired, is it from a lack of sleep or are you tired on a regular basis for other reasons? I personally think both you and your husband should have your vitamin B12 checked, along with homocysteine which can be elevated if you are not getting B12 to your tissues. Have you had your thyroids checked too recently? The fact that your husband has neuropathy in his feet SCREAMS a B12 deficiency to me. I had a severe deficiency back in 1997-99. I don't know why the feet tend to get bad first but they often do. I was so tired I could not stay awake. So tired I felt sick.
If either of you end up having a B12 deficiency, which is VERY common in elderly people, I highly recommend that you get some methylcobalamin to take daily (twice a day). Too much B12 won't hurt you but not enough will hurt every single cell in your body. I get sublingual (under the tongue) methylcobalamin from www.iherb.com
and have for 11 years. I like the Jarrow brand (5 mg.). You need to have folic acid from food (like fruits) or a multivitamin too.
It's not a bad idea to have your vitamin D checked too.
You need B12 to "make" acetylcholine, which you need in your body for MG (and lots of other reasons).
If I can help in any other way, let me know. People here are very supportive and have lots of information. I hope you will get some help from your primary doc, neuro or a 2nd opinion neuro.