New Members To The MS Forum....Please Introduce Yourselves!

[kadi1805]

Hi my name is Kathy,looking for more answers for MS

[kadi1805]

I am new as of yesterday, looking for some answers about leg spascity, would like to talk to someone with it.

[kadi1805]

Originally Posted by xrayeyes

My name is Colleen, I was dx with MS in May 2007. Symptoms have gotten worse since Jan. 09. I had a relapse in Sept. 10 which resulted in me collectng disabilty from work and now SSD. I am currently doing cytoxan treatments and physical therapy. MS only effects my legs which are really stiff and require me to use a walker to get around. My family completely supports me but I still feel very alone and I am loking for people to connect with who understand how lonely MS can be.

Hi Colleen, my name is Kathy I have not been dx yet, but have alot of the systems. My nero thinks I may have ms, first mri I had a few brain lesion but spinal tap was neg. Just had another mri after five years and I have alot more lesion, not active. My biggest problem is my legs. Do you get pain in the bones in your leggs and they seem to get will stiff. It is called spascisity, I told my nero that is my worry is with my legs. How long did your legs take to progress to where they are now. I am so looking for some answers. Take Care Kathy

[anna nunez]

Hi my name is anna and ive had ms for 5 yrs

[carolinaassis]

I took Gylenia for one month and then I was accepted into nursing school. They require that I take Vaccines ( Measles, German Measles and Varicella) I am super scare because those vaccines don't come as Killed virus, only live or atenuated. I am scared that it can cause a flare up. I caught a cold and it is taking forever to go away which shows me my immune system is week. I am not taking Gylenia since last week. Does anyone have been through this tough decision? Am I going to get sick if I take the vaccine?

Please, let me know ASAP!
Thanks and Regards!
Carolina

[Snoopy]

Originally Posted by carolinaassis

I took Gylenia for one month and then I was accepted into nursing school. They require that I take Vaccines ( Measles, German Measles and Varicella) I am super scare because those vaccines don't come as Killed virus, only live or atenuated. I am scared that it can cause a flare up. I caught a cold and it is taking forever to go away which shows me my immune system is week. I am not taking Gylenia since last week. Does anyone have been through this tough decision? Am I going to get sick if I take the vaccine?

Please, let me know ASAP!
Thanks and Regards!
Carolina

Hello carolinaassis and welcome to NeuroTalk.

Gylenia is an immunosuppressant and is probably the reason you are having a hard time getting rid of the cold. Those with MS do not have a weak immune system. Our immune system is compromised or "confused," it is attacking the wrong thing.

It is not recommended for those with MS to use "live" vaccines, however, there are circumstances where live vaccines are necessary. You should discuss this with your Neurologist for the best advice.

[Snoopy]

Originally Posted by anna nunez

Hi my name is anna and ive had ms for 5 yrs

Hello Anna and welcome to NeuroTalk.

[carolinaassis]

I was taking gylenia. I took for a month and now I am off for a week. I need to take varicella, measles and german measles vaccines. I am soooo scared. Does anyone knows if I take I will get sick, get the disease? By the way, I am with a horrible cold and not getting better.

[MaineCoonLvr]

Hello -- I'm new here. I've been experiencing base-of-the-skull-pain episodes for years. I've been doctoring with a good primary doc -- referred me to a rheumatologist (whew...no problems there) but he discovered a complete tear in my left shoulder. Went thru shoulder surgery July 28 and the LOOOOONG recuperation. Now that I'm getting better the skull pain is returning. Bummer!!!!! My exquisite PT therapist ?thinks? I may have a pinched nerve at the base of my skull. She is recommending I talk to my doc about traction as it ?may? help. I'm looking forward to reading all your stories -- and offer support to all here............and find info for myself as well.

[HawkDaddy]

Hi all, my wife has had MS for 14 or so years and has gotten significantly worse recently, and I am here to read the experiences of other people who are supporting loved ones with MS, and perhaps to seek advice now and then. It will be good to hear what others have gone through, what helps them, and so on.

Thanks,

Hawk