St. Jude SCS - Page 2

Rrae · 01-13-2012, 05:22 PM

Quote:

Originally Posted by alt1268

I am scheduled for a st. jude trial on February 21. For RSD of the right foot and ankle. This is my second trial and the first one which was a boston scientific didn't give me much relief. (I was down 3 days with extreme back pain from the insertion). Any insight is greatly appreciated.

Well, I can tell you one thing - you're sure to get plenty of support from our SCSers!

I'm sorry to hear your 1st trial didn't go well. Were you able to get any stimulation at all to your rt foot/ankle? Are you going with a different manufacturer this time? I have a Medtronic unit for my RSD in both legs. It does a great job of covering about 70% of the pain.
There are others here with Boston Sci's and are doing real well. There are also others who do have some problems. As you read thru some of the posts, you'll see quite an array of testimonies.

Will the same Dr be doing this implant? I wonder what went wrong the first time that caused so much pain in your back.
Just ask anything and the input will come. Meanwhile, read thru the threads that catch your eye and you can get a pretty good glimpse at what you might expect.

I sure hope this will work for you this time so you can have some control over your pain. Course, the pain is always there, but the SCS will cover over it so hopefully you can have a better quality of life and be able to do the things you've been missing out on.

Rae

alt1268 · 01-13-2012, 08:10 PM

Rae,

Thank you for the reply. My first trial was a Boston Scientific, after my back pain subsided, I had to have a readjustment. I would say I only got about 20% coverage in the foot and ankle. The pulse just was never right. I have been reading many threads and responses on this site and have been on the rsd forum for awhile. I appreciate all your help and it is nice to know I have support here as well.

Mark56 · 01-14-2012, 12:32 AM

So So Sorry to learn your Boston Sci Trial was a poor result. So then, we pray that your St. Judes will be the better fix this time and that the result will bring you real relief and not the partial you knew from the previous trial. 20% is not a win in any scenario.

Prayin,
Mark56

alt1268 · 01-14-2012, 11:08 AM

mark,

I spent 3 out of 7 days down with excuriating back pain. on the 5th day they did a readjustment. So I only had 2 good days.
Thanks for the prayers. I hope this will work, I want to get back to some kind of life.

Mark56 · 01-15-2012, 05:23 PM

God is faithful to care for those who seek His intervention in their life. I like your motto, for in recognizing surrender is a long way toward God's embrace, each can come to the point of being carried in times when pain is so great.

During my darkest moments and days of pain, friends would comment they had no understanding how I could bear up under it all..... my retort was universally "but wait a minute, are you not one who has said you are praying for me? It is precisely such care which has helped me keep presence of mind when pain has been at its worst." They took comfort in such realization, as I took away the blessing of their renewed expressoin prayer was on the way.

As for you, my friend, prayer is on the way,
May you feel blessed,
Mark56

alt1268 · 01-16-2012, 07:41 AM

March,

I love your trust and faith in God. The first thing I noted on the SCS forum was the faith and believe that was found. I must admit, one of the reasons I changed my saying was with all the medications, I am feeling distance between my relationship with the Lord and myself. Something I desire to have back in my life. The peace of it all.

alt1268 · 06-06-2012, 11:35 AM

ok. sorry to be gone so long but here is the deal. I was scheduled for my scs in February got postponed wc had not made a descision has to go before quality review. Rescheduled for April, same thing happened. Rescheduled for June 4. Same thing. I am now rescheduled for August.

Workers comp. will not return my phone calls and my attorney has not done a thing either. Thank God! we had a mild winter and I am actually doing well.

Sandy Kay · 06-07-2012, 11:31 PM

In this world there will be troubles. Be brave!
I'm sorry to hear about all the troubles you are dealing with with WC.
Nothing goes smoothly between the WC boards and Atty. Hoping the new St Jude trial helps give you more relief from pain.

Sandy

Mark56 · 06-08-2012, 09:20 AM

I, too, was WC and a LONG time was taken to follow my continuing body struggles. It was not so much the delay of the WC folks for me as that my body continued a long slide in decline and surgeries kept happening. We finally reached peace with them after the SCS was perceived greatly successful and a lapse in surgeries had occurred. Settlement was agreed without having to go to trial, a huge managed medical savings account was established and a significant settlement for the work related loss helped immensely when we were able once again to purchase a home.

My thirtieth surgery occurred last Thursday, dipping into the WC medical savings to diagnose and aid my woefully agonizing nerve condition in the arm. Next week, we learn the results and suggested plan of action. I look forward to the consult.

NOW regarding your attorney....... Personally I take extremely seriously my ethical obligations in practicing law as I have been able to resume practice. Among the greatest obligations counsel OWES clients, and the MOST FREQUENTLY found basis for Supreme Court censure or worse for an attorney in any state is THE FAILURE TO REMAIN IN CLOSE CLIENT CONTACT, followed very naturally by the failure to diligently prosecute the client's case. I urge you to be in touch with your attorney asking for update of the status of your case. There are very likely arguments occurring in the background of which you are not aware....... BUT the attorney is ethically obligated to keep you informed. I am deadly serious about this. If you cannot obtain communication from your lawyer, the Supreme Court of your state will listen if you contact them and let them know you have fallen away from knowledge what is going on and your attorney will not inform you. There is a very serious attorney regulation process in every state to urge and help attorneys to live up to their ethical obligations, which are many, including client contact.

I take ethics extremely seriously. All attorneys should.

I pray for you without ceasing ALT, hoping your journey will be made easier,
Agape,
Mark56

zzzzzzzzzzzzz

alt1268 · 06-11-2012, 08:03 PM

I received a letter this weekend from WC requesting another IME. This time it is with a pysiatrist. (physical medicine, rehabilation and pain) scheduled for the same day as my rescheduled stim. trial. I politely wrote a letter to my atty. stating that I could not attend because wc had already requested I reschedule my stim. trial to august and that they need to obtain my records from the last IME I had.

All this because we filled to make them pay the hospital for my lsb in November. (they paid the dr. not the hospital)

You know I really believe GOD has a plan for me and that is why my trial keeps getting postponed. Only he knows the reason for the delay.