New to this forum
I, too, was just diagnosed with MMN (back in December, 2011). I have all the classic symptoms, drop foot and wrist, profound weakness in my right leg and arm, overall tiredness.
I started on IVIG treatments at the end of December. They started me with a double dose over a three day period, then started infusions every two weeks for the next three months. I go back to the doctors for an evaluation after that.
My insurance company initially said I needed no authorization, but then changed the insurance code (!!!) and refused to pay! I've been screwing around with them since early January, and it looks like I've won most of that battle. Luckily, the infusion company has been great, but so far I'm on the hook for around $90,000!!!
So far, I seem to be holding my own, except for I'm always tired and have very little stamina. From what I can see, this is pretty normal when on IVIG.
I'm hopeful that the IVIG will give me some of mobility back, anything would be great!