Treatments for Fahr's Syndrome

[paulapepper]

Originally Posted by Starlight112611

Someone I love very much was recently diagnosed with Fahr's Syndrome. I know that there is no cure for this and it can only be treated on a symptomatic basis. He sometimes has seizures or days where he is in quite a bit of pain. I was wondering if there was anyone here who knew of anything that I could do to help: any alternative therapies, any advice on how to handle seizures or their effects, any ways to be supportive. Any words of advice would be appreciated. Thank you!

I have Fahr's too, but no pain and no seizures yet. There is nothing that western medicine offers. Maybe go to an acupuncturist???? paulapepper. I am 64.

[paulapepper]

Originally Posted by Starlight112611

Someone I love very much was recently diagnosed with Fahr's Syndrome. I know that there is no cure for this and it can only be treated on a symptomatic basis. He sometimes has seizures or days where he is in quite a bit of pain. I was wondering if there was anyone here who knew of anything that I could do to help: any alternative therapies, any advice on how to handle seizures or their effects, any ways to be supportive. Any words of advice would be appreciated. Thank you!

I have Fahrs disease and I have acupuncture. I don't know if it does any good but there is nothing else out there. Paula

[paulapepper]

Originally Posted by Dr. Smith

Here are some links to some organizations - some of which run clinical trials.
http://www.ninds.nih.gov/disorders/fahrs/fahrs.htm

Doc

Because I, too, have Fahr's but no pain. Paulapepper

[paulapepper]

Originally Posted by Starlight112611

Someone I love very much was recently diagnosed with Fahr's Syndrome. I know that there is no cure for this and it can only be treated on a symptomatic basis. He sometimes has seizures or days where he is in quite a bit of pain. I was wondering if there was anyone here who knew of anything that I could do to help: any alternative therapies, any advice on how to handle seizures or their effects, any ways to be supportive. Any words of advice would be appreciated. Thank you!

I have Fahr's too, but not any pain, yet. Its a shame that there is no treatment or even any research! Paula, 64 diagnosed 08.