Originally Posted by MayoMGPatient
I'm a 2+ year member of the distinguished and exclusive group of MG folks. I've never read or gotten any info. from my Dr. about theories on the causes of MG. My MG started suddenly within a week of the first flu shot of my life (age 54). Mr Dr. discounts this idea - but no one has ever offered any better theory. I assume most of my fellow MG-ist must have entertained theories themselves - any thoughts?
Just adding my experience...This is the first year I have ever had the Flu shot also, and now diagnosed with MG - I was diagnosed March 26 of this year. I have though, had symptoms for A LOT LONGER than before my flu shot...however, it seems that in the last 6 -12 months things have gotten VERY BAD and I have pushed for a diagnosis. My test results for the blood test (sorry newbie and don't know the appropriate names, but the one testing the antibodies in blood...that aren't supposed to be there unless you have MG....) well my test results were 234.98....anything GREATER THAN 0.5 is a positive for MG....so not sure what is up with my numbers!!!!! My Neuro has never seen/heard of numbers so high....in fact, even though I live in a suburb of Chicago, I am his only Myasthenia Gravis patients...he has 2 patients with Ocular Myathenia....but no others with Myasthenia Gravis....OH BOY aren't I the lucky one....
So that is all I can say on this topic....I will learn more as I stick around.
Darci from Chicago