Originally Posted by Idiopathic PN
Hi. I am not a regular of Celiac forum but very much a regular of PN forum.
My questions are:
1. Is it possible that one is gluten intolerant but not celiac or vice versa?
2. Could it be possible that celiac/gluten only affects the nerves and nothing else?
I have yet to take the test for Celiac disease. I don't have any of the "typical' symptoms of gluten intolerant like stomach aches, cramps, diarrhea or constipation,etc. (Or, maybe I am not just aware of anything else that is happening to my body.) But I have the typical symptoms of a PN.
Thank you for your help.
Yes, it is possible to have gluten intolerance but not be genetically Celiac. The reverse is less likely and IMO not possible. Gluten intolerance is when the gluten peptide escapes into the blood stream from leaky gut and then causes reactions at various tissue sites and damage. There was a study done in 1999 showing damage from NSAIDs to the GI mucosa in the intestines may allow peptides to cross when they normally would not. Hence gluten intolerance may be ACQUIRED and be from various drug uses.
At the Gluten File site are papers about gluten and PN:
The Gluten file is also at Facebook with discussions.
2) yes possible. But you may not feel some other effects yet, if your case is mild. Some gluten effects are subtle. Brain fog,
fatigue, thyroid disease, etc.
I'd recommend you read The Gluten File. It is a great resource and very complete with explanations.
As I understand it, the "scope" looking for villi damage does not always reveal it, even in Celiacs. Glenntaj here knows all the tests, and will hopefully come on here with details.