I think that before doctors are able to find a "cure" for this disease - and the sad truth is that there may NOT be a cure, per se - they are going to have to figure out if the ACh receptors are able to be revived.
Frankly, I'm not sure that can be done.
My (admittedly limited) understanding of this disease is that our symptoms are BECAUSE of the atrophy of those receptors, and most of us are pretty much playing "defense" after we finally get diagnosed.
Once I started going down this path - and before a concrete diagnosis - I looked back and realized that I had been having symptoms for YEARS (I looked back at pictures and noticed the eyelid droop between the birth of DD#2 and DD#3 - they are now 21 and 20).
As hard as it has been to do, I have finally accepted that I just might not get better; obviously I hope for a remission, but I know that I have to listen to my body.
For us, there is no "Conditioning will make it better" scenario, and trying to push ourselves can have disastrous effects.
Believe me, I understand where you are coming from - I look around my house at all of the things that I had put off doing until my kids left home, and now I am just faced with a house full of stuff that will probably never get done.
But every time that I start to try to do something about it, my body lets me know in no uncertain terms that it just isn't gonna happen. My mind is still railing against all of this, but I'm slowly coming to terms with that as well.
For us, the phrase "The mind is willing, but the flesh is weak" certainly applies.....
(Speaking of celebrities, take a look at recent pictures of Ashley Judd - I SWEAR her left eyelid looks droopy; I'm wondering if she has been tested for MG)