Sally, is Neuropathy a symptom of your POTS or the other way around?
You said you had auto NP, how did you get diagnosed with this type of PN?
What is worse POTs or auto NP?
Did you also ge burning feet and hands and sore feet?
I have bloated stomach, l just put it down to getting older. Hopefully it's not Auto NP.
Sue, It is hard to know for sure. POTS is caused by a lot of triggers. Car accidents, surgery, or sometimes hormones at puberty. Lot of young girls have it happen then and lose their childhood. No school, friends, etv.
I think sugery and/or antibiotics triggered it for me. With CFS, I had a good chance of getting it. A lot of people with CFS get Orthostatic Intolerance problems.
I was diagnosed with NP with symptoms and a couple of tests, no punch test or anything like that. It fell into place also with the Autonomic Neuropathy.
For ME, POTS is worse since I am better with my PN. It would depend on your case of POTS and PN. POTS is a breakdown of every system. The body does not work. No temperature regulation, digestion problems, terrible dizziness and lightheadedness on a scale that is hard to believe. I could not move my head at first.
The NP didn't move to my hands. My feet did burn, tingle and felt like I had socks on and had a lack of feeling. Not numb really, I could feel, but not normal at all.
A lot of people with POTS or "just" Dysautonomia have digestion problems. That is a huge problem for many. Swallowing, bloating, nausea etc. I had that all for a long time. Nausea 24 hours a day. I had to have a cold pack on my stomach at all times.
Again, the supplements were what I needed for the nerves. The sad thing is I have not seen another POTSY that gets this information from her doctor. VERY sad. I try to help them at least learn about the possiblities.
Many are in the hospital all the time. Many faint multiple times a day. I always made sure I had my wheelchair close by. Or usually I was IN it.
Many of them have LOW bp, so that is another problem that often goes with POTS. My BP was HIGH, then high/normal and now normal and sometimes low.