Calling all TOS sufferers with extra ribs from birth...

[nospam]

Originally Posted by parbie

But can anyone tell me if it makes sense to see a vascular surgeon since I have neurogenic TOS? Or only a thoracic or neurosurgeon? In that case, I am stuck with this one doctor, because the rest in NY are vascular. I am also willing to travel to SF and possibly LA or TX since there is a limited number of experienced thoracic surgeons in general from what I've found so far. Any input would be appreciated.

The majority of TOS specialists are vascular surgeons. While there are some thoracic specialists (Like Dr. Dean Donahue) I wouldn't focus your search on thoracic surgeons. Still, definitely consider Dr. Donahue.

http://surgery.wustl.edu/TOS_Consortium.aspx

Neurosurgeons general don't deal with ribs, they perform scalenectomies and neurolysis only.

[arlsandstrom]

Originally Posted by rbn4jsus

Hi there!
Yes, we are a family of TOSers. We all have cervical ribs and have each had one rib resection transaxillary (through the armpit). We have experienced major relief from constant pain, though still achey with overuse some days. But much better than before. Definitely worth the surgery. I have a blog about my experience with lots of info www.rtosjourney.blogspot.com
If nothing else at least my pain and issues can help educate others.
Hope you find the relief you deserve!
~Robin

Hi Robin,
Yesterday I was ready to take on the world, and was thinking maybe I am meant to have the ribs, mybe they help me with my singing or something? Today after the pain of holding a heavy folder, I am not so sure about my ability to cope just using Alexander technique. Nonetheless, your website is inspiring, and I am hoping to study Alexander when I get back o Australia.

Here's to pain management through good spinal use and healthy living!
Thanks again for your reply.
Ans