Welcome to the NeuroTalk Support Groups.
Did the doctor call your diagnosis Sydenham's Chorea or simply Chorea or that you had Choreiform movements?
There are many different reasons a person may have chorea.
My son was diagnosed with Sydenham's Chorea at aged 5. Differential diagnoses were made some 5 years later. (long story). He was extensively tested at age 5 for many different causes of choreiform movement disorders including Wilson's Disease, Brain Tumours, and Huntington's Chorea plus more.
Jones Criteria are used in diagnosis of Sydenham's.
Curr Neurol Neurosci Rep DOI 10.1007/s11910-011-0202-2
Differential Diagnosis of Chorea Ruth H. Walker
Medscape - Chorea in Adults
updated Oct 2014
I'm curious to know if you've been ill in recent months or had a "strep throat" in recent months? GABHS [Group A beta-hemolytic streptococci] or if you have any other symptoms apart from the movements?
I really have to say that I'm so sorry you're dealing with this.
It would be extremely worrying and also extremely difficult to do things in daily life.