What to expect Small fiber neuropathy?
I have both large and small fiber neuropathy, but I'm more concerned about the small fiber (as I have had many autonomic symptoms).
I'm wondering what I should expect as far as progression of the disorder and symptoms (pain, etc.) ? the doctors are very mum about it or say they have no idea.
I started with painful pricking sensations on my skin, then the feeling of bugs crawling on my body, then I started to have burning across my back that only got really bad for a couple of days at a time. It went through these stages pretty quickly, now I occasionally still get the bugs crawling feeling, but it seems to have settled right now on just having numbness in my hands/arms, feet/legs (which is quite wonderful in respect to the alternative!).
I'm wondering from those who have been through this for a while, did you notice any particular stages of progression? (ie. numbness, then burning)
what should I expect next? burning hands and feet?
And I'm also curious about the autonomic progression-
I seem to have these sudden "flare-ups", where I'll have an issue with my stomach really badly for about a month (severe nausea, reflux), then it will settle down and I end up with more mild symptoms- ie. chronic reflux/indigestion, same with my blood pressure and heart- I had one flare-up that made my heart rate and blood pressure go nuts for several weeks, now it's settled down with some minor left-over symptoms, (orthostatic hypotension, a raynauds-type symptom).
would love to hear from someone who has similar symptoms who may be further along than myself.