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What to expect Small fiber neuropathy?

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Unread 02-08-2013, 06:28 PM   #1
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Join Date: Jan 2013
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Default What to expect Small fiber neuropathy?

I have both large and small fiber neuropathy, but I'm more concerned about the small fiber (as I have had many autonomic symptoms).

I'm wondering what I should expect as far as progression of the disorder and symptoms (pain, etc.) ? the doctors are very mum about it or say they have no idea.

I started with painful pricking sensations on my skin, then the feeling of bugs crawling on my body, then I started to have burning across my back that only got really bad for a couple of days at a time. It went through these stages pretty quickly, now I occasionally still get the bugs crawling feeling, but it seems to have settled right now on just having numbness in my hands/arms, feet/legs (which is quite wonderful in respect to the alternative!).

I'm wondering from those who have been through this for a while, did you notice any particular stages of progression? (ie. numbness, then burning)
what should I expect next? burning hands and feet?

And I'm also curious about the autonomic progression-
I seem to have these sudden "flare-ups", where I'll have an issue with my stomach really badly for about a month (severe nausea, reflux), then it will settle down and I end up with more mild symptoms- ie. chronic reflux/indigestion, same with my blood pressure and heart- I had one flare-up that made my heart rate and blood pressure go nuts for several weeks, now it's settled down with some minor left-over symptoms, (orthostatic hypotension, a raynauds-type symptom).

would love to hear from someone who has similar symptoms who may be further along than myself.
Jaimy is offline   Reply With Quote
Unread 02-09-2013, 02:03 PM   #2
Join Date: Jan 2013
Location: Florida
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Default small fiber neuropathy

The doctors says this what I have might be small fiber neuropathy, because the EMG was negative. Mine started almost a year ago. At first the burning sensatio was in my legs Then the intense burning gradually spread to other parts, and is now all over the body with intense burning. I noticed, that after the burning has been intense, the numbness comess, mostly my feet, and wrists, but, believe it or not, my gums. The burning pain gets much worse as the afternoon and night coms on. I will describe the burning as if you have an open sore of a scratch on you skin, and you put salt on it or hydrogen peroxide, it really burns. I take Lyrica 3 times daily, and it helps
Best luck to you.
Synnove is offline   Reply With Quote

autonomic neuropathy, small fiber neuropathy

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