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vestibular therapy not helping anymore?

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Unread 02-21-2013, 11:09 AM   #1
cyclecrash
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Default vestibular therapy not helping anymore?

After the first couple weeks of my vestibular therapy I was very excited because I was noticing a difference in my dizziness and my headaches were almost gone! But since then I've been having a marked increase in my anxiety/emotions/chest pains and my eyes, that used to only be blurry with movement, are now blurry pretty much all the time.

I've also noticed an increase in confusion and brain "buzzing" that is very distressing. It's so hard to tell what's causing what because I don't live in a perfect world where the only change in the past 5 weeks has been added vestibular therapy! The headaches are still pretty much gone which is great and the actual vestibular exercises are getting much easier so must be helping for that.

For now I'm going to continue the vestibular therapy but we've stopped the walking exercise and are sticking to the seated head movements and standing still balance moves. I've stopped doing lumosity online sessions because I think they might be the cause of the further eye problems although I was noticing mental improvement with doing them.

My therapist says that if the increased symptoms don't settle down we will do a trial of stopping the treatment altogether for a few weeks to see if there's improvement. Next week I see the neurologist (sports concussion clinic) in Toronto who might have a different view on therapy or what I should be doing so we'll see.

Has anyone else had an increase in symptoms a few weeks in but then they get better? Anybody had increase in eye symptoms? I had the expected increase in certain symptoms for the first few days after each session but this is lasting too long.

I hope you are all having a good day!
CC
__________________
I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world.

Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances.

Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident.

The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful!

My brain WANTS to heal itself... I just have to let it and stop trying to get better!
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Unread 02-21-2013, 11:49 AM   #2
TommyB
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Smirk Therapies in Ottawa & Beyond

Hi CC,

I am in Ottawa too. I had a concussion in Jan. 2012 and still have PCS. I have tried quite a few therapies with little to no success. I have gotten back to being able to do some exercise and social events but have had quite a few setbacks. It has been a very slow recovery trend with lots of physical and emotional ups and downs. Perhaps we should talk/e-mail about our various treatments. I still think I have missed something. I have 3 more professionals on the horizon to work with in the Ottawa area (a chiropractic neurologist, an upper cervical chiropractor and an interesting MD/naturopath).
A current setback last weekend has my brain not liking screen time again. must keep this short.

TommyB ; )


Quote:
Originally Posted by cyclecrash View Post
After the first couple weeks of my vestibular therapy I was very excited because I was noticing a difference in my dizziness and my headaches were almost gone! But since then I've been having a marked increase in my anxiety/emotions/chest pains and my eyes, that used to only be blurry with movement, are now blurry pretty much all the time.

I've also noticed an increase in confusion and brain "buzzing" that is very distressing. It's so hard to tell what's causing what because I don't live in a perfect world where the only change in the past 5 weeks has been added vestibular therapy! The headaches are still pretty much gone which is great and the actual vestibular exercises are getting much easier so must be helping for that.

For now I'm going to continue the vestibular therapy but we've stopped the walking exercise and are sticking to the seated head movements and standing still balance moves. I've stopped doing lumosity online sessions because I think they might be the cause of the further eye problems although I was noticing mental improvement with doing them.

My therapist says that if the increased symptoms don't settle down we will do a trial of stopping the treatment altogether for a few weeks to see if there's improvement. Next week I see the neurologist (sports concussion clinic) in Toronto who might have a different view on therapy or what I should be doing so we'll see.

Has anyone else had an increase in symptoms a few weeks in but then they get better? Anybody had increase in eye symptoms? I had the expected increase in certain symptoms for the first few days after each session but this is lasting too long.

I hope you are all having a good day!
CC
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Unread 02-21-2013, 12:46 PM   #3
Mokey
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Sorry to hear things are not going well. It really sounds to me like some vision related deficiencies. It was such an important diagnosis for me...and finally getting prisms has allowed me to read, use the computer, and do better with my vestibuoar rehab.
I have put a link to some general info in case you don't have it.

If I recall correctly ??, you are still waiting for the neuro-opthamologist. I would suggest going to an optometrist who does similar testing ( for binocularity post brain injury!) and who is into the behavioural side of vision. I had asked mine to give me names in Ottawa...she did...and I lost them! I will try again and send you those names.


http://www.braininjuries.org/

Good luck!
__________________


What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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Unread 02-21-2013, 02:24 PM   #4
MiaVita2012
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Default I Had to Put on Hold

I had to put on hold because of I needed a new vestibular therapist and because I have my jaw thing going on that is first priority now.Since I stopped vestibular therapy I seem to be running into things again and just have to be more careful because I'm feeling my balance off again....

I stopped 2weeks now and I still get the motion sickness & nausea but not as bad as with therapy and still getting vertigo more now.I start back with a new therapist in March.

Hope you get to feeling better
__________________
What Happened: In 2011 I was in a MVA
.


Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems.

Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention

Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks

Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation.

~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~
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Unread 02-21-2013, 03:05 PM   #5
berkeleybrain
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I have been seeing a neuro-opthalmologist for vision therapy. I have prism glasses which has helped with reading and watching video, but I am still slow with processing and memory issues (i.e. I can't remember what I just read!).

Although they identified some vestibular issues, the opthalmologists recommended stabilizing my vision first before starting vestibular therapy.

Perhaps vision issues are at play as well?

Best of luck!
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Unread 02-21-2013, 08:15 PM   #6
Mokey
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Here is a lnk for vision stuff which also has a directory. There are Ottawa listings.
http://www.covd.org/
__________________


What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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Unread 02-22-2013, 12:10 PM   #7
cyclecrash
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Thank you for all of the information! I am not in Ottawa, in fact I am about 6+ hours from Ottawa. Closer to the Toronto area. I totally agree that I have eye issues and I have seen my optometrist 3 times. I've been trying to get a referral to a neuro ophthalmologist and was told I have to see an optometrist first. Soooo Optometrist appointment isn't until the end of May and then he has to refer me to neuro.

I've heard that it can be up to a year to see a neuro ophthalmologist so I'm very frustrated. I feel like my healing is on hold until I can get these eyes taken care of. I don't think they're as bad as some of you though because I am able to read it just causes strain and I can focus on things if I try and am not moving. I think it's my right eye in particular that's off.

I see a new neurologist next Tuesday and I'm hoping she will refer me to the neuro ophthalmologist so I can skip the step in May. I have my hopes up too much on this appointment next week but don't we all when we go see new doctors! I know there's no magic pill but I'd like some relief/hope for the eye symptoms. I just want to be able to walk again without everything getting worse!

I'm going to check out the links posted and see if there's a closer doctor. Money's really tight right now and spending $1000 to see an eye doctor that might not even know what he's talking about doesn't appeal to me much. I'm still trying to decide on whether to have the neuro psych testing or not so trying to save where I can.

Thanks again for the help!

CC
__________________
I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world.

Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances.

Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident.

The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful!

My brain WANTS to heal itself... I just have to let it and stop trying to get better!
cyclecrash is offline   Reply With Quote
Unread 02-22-2013, 12:20 PM   #8
cyclecrash
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Default May have found one!!

Mokey this link you sent has a doctor that's only 15 minutes from me!!! I've been looking at the NORA website and had not seen this link before. Thank you so much for posting it! I'm going to call and see if I can get an appointment. (probably need a referral and it'll be 6 months to see him but at least it's something!) I've looked everywhere (I thought) to find someone so this is great! Kind of ticks me off that my optometrist wasn't aware this guy was just down the block from him... hmmm...

Thanks again!
CC

Quote:
Originally Posted by Mokey View Post
Sorry to hear things are not going well. It really sounds to me like some vision related deficiencies. It was such an important diagnosis for me...and finally getting prisms has allowed me to read, use the computer, and do better with my vestibuoar rehab.
I have put a link to some general info in case you don't have it.

If I recall correctly ??, you are still waiting for the neuro-opthamologist. I would suggest going to an optometrist who does similar testing ( for binocularity post brain injury!) and who is into the behavioural side of vision. I had asked mine to give me names in Ottawa...she did...and I lost them! I will try again and send you those names.


http://www.braininjuries.org/

Good luck!
__________________
I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world.

Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances.

Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident.

The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful!

My brain WANTS to heal itself... I just have to let it and stop trying to get better!
cyclecrash is offline   Reply With Quote
Unread 02-22-2013, 02:22 PM   #9
Mokey
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great! good luck!
__________________


What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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