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Chiari Malformation?

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Unread 07-05-2007, 06:43 PM   #1
dfaulk
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My wife has been having many neurological issues over the past 3 years and we have seen several neurologists and it seems we have gotten nowhere. Lots of test, mri's, scans, eeg's emgs and we have no solid answer. She basically gets extremely fatigued to where she can barely walk, she has seizure like episodes, poor memory, speech and coordination problems. They have said it doesn't appear to be MS, epilepsy, lyme, or hashimoto's. However, I did read about Chiari malformations and have access to her MRI's and it looks like it may be possible, but the radiologists didn't mention it. I have attached the suspect MRI photo. Does this look like possible Chiari? Any neuroradiologists in the crowd?





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Unread 07-06-2007, 09:53 AM   #2
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need a different view
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Unread 07-10-2007, 08:35 PM   #3
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Okay...here is a few shots from a different angle. Does this look like possible CM1?
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Unread 07-11-2007, 08:56 PM   #4
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Hi, I am sorry, I am not a doctor. I wanted to tell you that my family has been through the same testing that your wife has been through. We live in Louisiana and my nephew has seen 3 doctors here and then we went to Houston. Houston is who diagnosed my nephew with Chiari. However, would not do anything until he had an "episode" (heart attack or stroke). He then went to North Shore Long Island Jewish in New York. The doctors there are amazing. My nephew was playing 3 days after his brain surgery and 2 days after his back surgery. My sister was just diagnosed yesterday with Chiari. My best advise to you is to email the doctors there and tell them your story. They will either email you back or give you phone call. I wish you the very best of luck.
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Unread 07-12-2007, 05:50 PM   #5
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Thanks for the reply and I'm glad things are working out for your nephew...and I'm sorry about your sister. As you said, I think the key is to be proactive about getting results instead of waiting. I will look for a doctor where you mentioned maybe they can help. Thanks again!!
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Unread 07-13-2007, 09:19 AM   #6
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There are other Chiari experts around the US . Where do you live ? Might be able to help you find one close toyour home. That other Xray you put up its hard to tell.
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Unread 07-13-2007, 06:10 PM   #7
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Currently live in eastern NC...very close to Raleigh. Duke and Univ of NC are both fairly close. Do you know of any experts near Raleigh? Thanks.
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Unread 07-14-2007, 09:29 AM   #8
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Here is a map with suggested drs from Patients . Dr. Rosner in NC is good
http://www.chiariconnectioninternational.com/map.html

also :
NORTH CAROLINA
Dr. James Adelman
Neurologist
510 N. Elam Ave.
Greensboro, NC 27403
336.547.8000
Dr. Herbert Fuchs
Neurosurgeon
Duke University
Raleigh, NC
Dr. Robin Koeleveld
Wake Medical Center
Raleigh, NC

Also :
North Carolina Tim George - Neurosurgeon Duke Medical #3272
Durham, N.C. 27710 (919) 684-5013
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Unread 07-15-2007, 10:47 AM   #9
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Thanks for the names. I will try to contact one close by and hope for the best. I'll let you know how it goes.
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Unread 08-25-2007, 01:38 PM   #10
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You should check out the fourm on b12 deficiency. That also causes the same kinds of symptoms.
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