Welcome to the ALS Registry
350+ pals from 33+ countries
This is the registry for Amyotrophic Lateral Sclerosis (Lou Gehrig's Disease, or ALS) patients. I originally started it as a mailing list and it is now being maintained on the PatientsLikeMe site. If you are a Person with ALS (PALS), you can add your name by signing up for a PatientsLikeMe account and filling out your profile.
I am excited about what we can do with the ALS/MND Registry at the new PatientsLikeMe it will be more then just a registry for pals, you can have you own detailed profile page. If you have any questions email PatientsLikeMe at firstname.lastname@example.org
. I think this is going to be great. It is a registry that has detailed information from the patients who want to share it. Plus you can come back as often as you want and update your info, so it is as current as possible, plus see what other pals are doing and how they are doing it, what they are taking.
You can help by passing this info on to other PALS.
Bobby Brannigan (PALS, diagnosed 1994)
ALS IS NOT PREJUDICE
WHERE EVER, WHEN EVER, WHO EVER
A new system of medical care by patients, for patients
a.. Discover better ways to manage your disease.
b.. Benefit and learn from shared experiences.
c.. Connect to those making a difference in your disease.