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Tripping Over My Own Feet!

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Unread 09-06-2007, 12:04 PM   #1
Ellie
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I have never been blessed with much grace in my life, so for me to complain about this is almost sprinkled with irony.

I have a severe midline shift to my right side, needless to say - I run into a lot of things. I underwent vision therapy as there is no correction for my coordination (or lack thereof) and it helped a little, but I think most of that may have been in my head.

Maybe I am unwilling to accept the aging process, maybe it's my epilepsy, maybe it's related to my crappy eyes that can't be fixed, or perhaps the Lyme, or 'something' else. But I am getting worse.

I can only compare it to being blind and having someone move something in your home that you have become used to being in the same spot. The only difference is I can see, I see it there and then I run dab smack into it. My days are painful, sometimes funny (if I can't laugh at myself, what can I do?) and typically messy since I spill a lot of things.

It's like being extremely clumsy and lacking depth perception.

When I fill my coffee pot, I do it twice because I spill about 1/4 of the water aiming for the hole. When I fill my coffee cup, it overflows 3 out of 5 times. When I walk past my staircase (which is awkwardly located in the middle of my house), I run into it 4 out of 5 times. I run into doorways more than anything, always on my right side.

Now I keep tripping over my foot which is new. It's like it doesn't come up enough and from the top center of it down to my toes it drags and then I trip. Almost like my foot is dragging and my leg isn't catching on to pick it up. I caught myself yesterday walking to my mailbox like a horse where I was pulling my knees up to avoid tripping.

Is there something that would cause my foot to suddenly become a lazy addition to my leg? I'm sure I'll eventually learn to deal with it, but it's annoying. I usually laugh and anyone in my house usually laughs with me (or at me) but it's not really funny all of the time.

I will usually trip over the top half of my foot (it kind of bends) or my foot stays sort of flat and it drags and I end up tripping that way.

I feel like I'm nuts, heh.

I'm not paying for vision therapy again since most insurance companies think it's some fad thing. Plus, being taught how to walk is kind of weird since I know how to walk and all.

I was thinking maybe it has to do with the Lyme as my joints swell up a lot now and even the muscle covered areas of my arms and legs swell too. I thought maybe the swelling makes my foot mad or something.

Anywho, it could probably be anything or just me being a clumsy nitwit. I just wanted to vent about it. Just had carpet cleaned last week and then tripped today and spilled coffee on it.

Gah!
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Unread 09-06-2007, 12:32 PM   #2
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I suppose you were checked for Parkinson's when they did all of that testing recently?
- the foot drag thing reminds me of how my dad started with it.
But it could be many other things too

Proprioception?? I think that is when you aren't aware of where you are in relation to objects???
You can see objects but your awareness of space/distance is off - I think that it a basic description of it.
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Unread 09-06-2007, 12:37 PM   #3
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found some info about it-
http://www.sensory-processing-disord...sfunction.html


a whole list of sites-
http://www.google.com/search?q=Propr...ient=firefox-a
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Unread 09-06-2007, 01:02 PM   #4
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Well, the sad part of being in this area is that my doctors are idiots. It's funny I pay them and then educate them. The doctor I was sent to, told me to take these antibiotics and THEN go get a full panel done (which most people are aware that the antibiotics can really jack up your results). This doctor, per her website, claims to specialize in the diagnosis and treatment of Lyme Disease - and then looked at my file, looked at the pictures and left the room. I could hear her asking someone else about Lyme!

The only thing she was able to do without leaving the room and asking someone was to identify the EM rash (which I had pictures of), and as you know, it shouldn't take a genius to identify a bullseye rash when it looks like a bullseye.

I didn't have my full set of labs done and noted several tests she didn't order. I haven't been tested for PD and several other things. A while ago they tossed around the idea of MS but I was like 25 at the time and it was the same doctor who wanted to treat my seizure migraines with botox (yay california).

I had sensory integration testing as young teen and they pretty much chalked up my FMS's weren't all that great and I had hand tremors (i forgot the name, but it actually has one) - however, my dad has those hand tremors, too and he was tested for PD and he's OK (short of that cancer issue he's ok, I mean).

I'm trying to make myself savvy but I am very cautious doing that because I don't want to end up forcing myself into this paranoid state and starting to self-diagnose. I seem to not accept this whole Lyme thing.

I know I sound crazy, but I just think there's something else doing on. I know I've had weird positive results, but plenty of crap can cause false positives and negatives.

I'm babbling again, aren't I? I swear, I am having one of those days where I just want to talk and talk and talk and I'm sitting here and my dogs wont even hang out with me (perhaps it's the bad haircut I gave Fozzy).

Oh, but yeah. My doctor mentioned that P-word you used. I think theres another term for it. What's weird, is the more testing she did to try and force me to focus (I also can't focus most of the time) she'd notice weird stuff going on (she said it was absence seizures but I think it was just something very mild). The way she explained it, is my brain has good days and bad days. One day it will work enough to let my eyes focus, one day it takes a sick day and my eyes wont focus. I did an extensive test run with her (3-4 days in a row and she only charged for 1, wooo!!) and my eyes performed differently every day.

I'm a lemon

In other news, I have a zit so big on my chin the right side of my chin is actually swollen.

Now that's hardcore right there.
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Unread 09-06-2007, 01:04 PM   #5
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Oh, also. I will get the IGenex testing done which will cover everything including the co-infections. I know it's important as well as checking for other crap but IGenex is pre-pay and my insurance will only give me a portion of it back so it's not fitting in my budget this month. Hopefully next month I can get all of my testing done. I don't think anything can progress too much in a few weeks.

Oh, also thanks for those links. Checking them out now!!
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Unread 09-10-2007, 05:53 PM   #6
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I totally just tripped (well, about 20 minutes ago) and tried to break my fall and now my collar bone is crooked. I actually laid there and laughed hysterically. I'd go to the doctor if I could get my arm to reach to put my socks and shoes on.

It doesn't hurt much except when I try to raise my arm up. I think I'll ice-er-up and see how goes tomorrow. I didn't hit my chest and didn't fall hard enough to break anything, I think it's just mad right now.

If it wouldn't hurt, I'd kick my foot for being such a jerk.

I'm going to have my name changed to Grace. Just for the irony. My doctor says I need more iron.
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Unread 09-10-2007, 11:55 PM   #7
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Eeesh don't mess up your collar bone like that- you might end up on the TOS forum - LOL

Let us know how it is in the morning OK?
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Unread 09-11-2007, 04:44 AM   #8
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i had this problem when i was going up the stairs with my left foot 1 1/2 years ago after my stroke. i did a lot of research at the time, and discovered that foot drag is usually what you're describing. it can happen while walking on a flat surface, too. there's a variety of conditions that can cause this, so don't let the stroke word scare you. fortunately, my foot drag went away after a month and a half after my stroke. it wasn't bad, since i just took it slow and carefully on the stairs. if it can't be helped, there's a foot brace, so you don't trip this way and help make your walking a bit safer.

oh, sorry, i don't have a clue about running into things, as you can still see. how weird, since i do this on a rare basis. have for years, even before my stroke. i've been such a medical mystery and no one could figure this out, even though i see fine out of my right eye. i've been blind in my left eye since birth. yes, i do run into something on my left on a rare basis because of that. but, i've also run into something left out on the floor, even when i could see it out of my right eye. one time, i've bonked my head on a rack that was in front of me when i was reaching for a clothing on a rack behind it. it's like i could see, but not notice it front of me?? i'll keep checking this thread to see if there's clues. it's definitely weird.
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Unread 09-11-2007, 04:47 AM   #9
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Started hurting before bed. It's 2:45am and it woke me up. It hurts like heck. I'm going to take Tylenol PM and go to doctor when I wake back up.

I took pic yesterday shortly after my post, I'll attach it. It's my right/your left. It's now more swollen to the center and up the right area of my neck.

How weird!!
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Unread 09-11-2007, 04:59 AM   #10
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makes me wonder the more i reread it. i wonder if what happened 1 1/2 years ago wasn't a stroke at all, but something else. now, that's paranoid for me. hehe. well, i was tested for everything under the sun and they did not find anything wrong with me. it was only after the 5th mri scan that my neurologist said that it had to be a stroke. he's a professor, for god's sakes! i couldn't find any other neuro who would work with me. they're just not willing and they treat as if i'm insane. so, that why i ended up at the university hospital 2 hours away from my home. aaaagh, i hate being a total mystery. it's not my doing. ah, well, sorry for this rant. just had to rant... lol. i was 33 when i had my stroke, and i'm 35 now. i know, it was not supposed to happen. but, it did. ((((((ellie))))) hope it's not broken. your collarbone, that is.
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