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Unread 02-04-2008, 05:30 PM   #1
Needanuface
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Crazy I'm glad I found you

:wink:Hi! I'm new here and wish I would've found this a long time ago, it looks like a lot of people are getting the help they seek.

In case you're wondering, my screen name is because my face was paralyzed when I had a 4th tumor removed from my salivary (spit) gland. I've had reconstructive surgery since and look somewhat better but that's OK.

I was radiated 20 years ago when I had that 4th tumor, but did not have cancer-they thot they could shrink it b4 surgery and stop any furture ones from growing. Wrong! It didn't shrink & I had 3 more. I also now have peripheral neuropathy, tarlov cysts, Raynaud's, thyroiditis & nodules, heart something, stomach stuff, one vocal cord, one ear drum, can close one eye and have a lot of trouble swallowing. I was FRIED and am on the brink of skin cancer. I don't remember it all but whatever was involved with any cranial nerves is why I have a problem. I just take medication, get tested once a year & suffer in the middle, so far that's all that's been happening. Except for the denerving-it's scarring (looks like eating away to me) at my jaw muscle, tissue, skin, tongue, gum, bones, neck muscles, shoulders, nerves all the way down to my fingertips. The muscle in my hand looks like part of it's missing-is anyone else experiencing that? I have an appt. with a new neurologist who specializes in neuromuscular diseases.

I also have a marvelous sense of humor, so that and my faith in the Lord is what's pulling me through. Do I have bouts of depression? You bet. If I hadn't been radiated, I might not be sick.

I am also the mother of one married son & grandmother of 3, they will be moving to Asia to teach in the fall & will be gone for 4 years. I'm hoping I'm strong enough to make the 18 hour one way trip, but I'm not sure.

I like to sew, crochet, read, spend time online, write poetry, redecorate, dance (as much as I can), watch old black & white movies, shop, & spend time w/friends.

That's partially who I am.
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Unread 02-04-2008, 06:09 PM   #2
Alffe
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Hi and welcome to Neuro Talk....you're going to fit right in here! Jump in any of the forums...I'm glad you've joined us.
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Unread 02-04-2008, 06:16 PM   #3
MSCherokee
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Hi there and welcome to NT!
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Unread 02-04-2008, 06:22 PM   #4
Twinkletoes
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Welcome to you, Needanuface! Yep, your username made me want to know more!

Glad you found us. You can hang out any ole time. You look good to me!!!
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Last edited by Twinkletoes; 02-04-2008 at 07:03 PM.
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Unread 02-04-2008, 06:36 PM   #5
GladysD
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Hi and welcome to NT

http://neurotalk.psychcentral.com/forum61.html

You can find a few of us in the Creative Corner...feel free to jump right in :-)
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Unread 02-04-2008, 07:10 PM   #6
DM
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Welcome to NT, Needanuface. We are glad to have you with us. Sorry for all that you are going through, but I think you'll find alot of support here w/our many forums full of very friendly members.

Let us know if we can help in any way and Welcome again.
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Unread 02-04-2008, 07:24 PM   #7
Shelley
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Hi Needanuface,

You will find a great community here. Fun, caring and good listeners.

I crochet too! My Grandma taught me. Right now I am making a baby blanket.

Let us know if there is anything you need.
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Unread 02-04-2008, 07:31 PM   #8
Alffe
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I wonder why Shelley is making a baby blanket...
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Unread 02-04-2008, 07:46 PM   #9
AfterMyNap
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Hi, Needanuface! Welcome to NeuroTalk!

Using the search engine located in the toolbar near the top of each page, you will find many different discussions with some of your keywords. Since I have no idea which areas interest you most, I won't venture to guess.

Feel free to join in anywhere and let us know if we can assist you in any way.
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Unread 02-04-2008, 08:02 PM   #10
PolarExpress
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Hi and Welcome!
Holy Cats, but you've been through a lot! There are always people here to talk to. It's always good to have someone to bounce thoughts & ideas off of. Whatever forum interests you, serious or just for fun, go for it! I look forward to learning more of who you are..
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