Go Back   NeuroTalk Support Groups > Health Conditions A - L > Arnold Chiari Malformation & Syringomyelia

After Surgery For Chiari Malformation

Reply
Thread Tools Display Modes
Unread 05-01-2008, 10:42 PM   #1
COWPATTY
New Member
 
Join Date: May 2008
Posts: 2
Default After Surgery For Chiari Malformation

Okay, I Have Never Posted Any Thing, Dont Know If This Will Work But Here Goes. I Can Only Hope A Neurologist Reads It. My Son 19 Had Surgery 1 Year Ago For Chiari Malformation And Syringomyelia. It Looked Like The Surgery Went Great. But He Had Another Mri And His Brain Stem Has A Kink In It And It Did Not Have One Before The Surgery. The Surgeon Said It Is Not A Problem, But I Am Worried That It Is, Maybe He Did Not Want To Scare Me?? Does Any One Out There Know Anything About This Sort Of Occurrance After A Chiari Surgery?? I can be contacted via this forum. I Just Got This Sick Feeling That I Thought I Woulf Go On Line And See If Any One Had Any Answers. Instead Of The Stem Of His Brain Having A Smoothe Slope It Has A Kink Now. Thanks For Listening Patty!
COWPATTY is offline   Reply With Quote
Unread 05-01-2008, 11:32 PM   #2
Koala77
Super Moderator
 
Koala77's Avatar
 
Join Date: Jan 2008
Location: Australia
Posts: 11,795
Default

Hi there Cowpatty, and welcome to NeuroTalk. I just thought I'd copy my welcome over to here incase it gets lost in the Social Forum.

Don't worry about your how you post, you're doing just fine! I'm pleased that your son's surgery went well, but as a mother, you have every right to be concerned.

I see Av8rgirl has already given you the link to the site, so hopefully you'll find some others who are more up to date on the topic than I am.

I hope you get the answers that you're looking for.
__________________
Eastern Australian Daylight Savings Time
and
my temperature


.

Koala77 is offline   Reply With Quote
Unread 05-02-2008, 11:57 AM   #3
razzle51
Member
 
razzle51's Avatar
 
Join Date: Aug 2006
Location: Iowa
Posts: 847
My Mood:
Default link

what link I dont see one??? I wouldnt worry its probably just some scar tissue .
__________________
Remember That Life Is Short!!!" break the rules, Forgive quickly, Love truly, laugh uncontrolably, And never regret anything that made you smile
razzle51 is offline   Reply With Quote
Unread 05-02-2008, 11:59 AM   #4
Curious
Yappiest Elder Member
 
Join Date: Aug 2006
Location: Texas
Posts: 13,418
Default

hi razzle...these 2 posts were copied over from the welcome forum..that's were the link to this forum was.
__________________

.
Curious is offline   Reply With Quote
Unread 06-12-2008, 08:06 PM   #5
AzSyringoChiari
Junior Member
 
AzSyringoChiari's Avatar
 
Join Date: Jun 2008
Location: Arizona
Posts: 21
Default

Cowpatty,

As a mom, my thoughts are a mothers instinct can not be ignored. To ease your mind you have every right to seek a second opinion. All the best Chiari resource links have been posted by the super moderator under useful links or useful sites....sorry can't remember exactly. It is at the top of the post section.

Taking this route will bring peace of mind, which is priceless!
Blessings,
AzSyringoChiari
AzSyringoChiari is offline   Reply With Quote
Unread 06-18-2008, 06:04 PM   #6
braingonebad
Magnate
 
braingonebad's Avatar
 
Join Date: Jan 2008
Location: NW Ohio
Posts: 2,450
My Mood:
Default

Like the AZ said, I'd want another opinion. And I'd want to follow up with more MRIs. Maybe in time that kink will straighten out.

I can't say - I'm not a dr - what is up with your son. But one thing I can say is right now it is as important what symptoms he has as what any scan or test shows. Please keep track of that. It can help his doc figure out what's going on.

Anything that happens within the brain, spine or nerves can produce symptoms. And for me, I worry more about how it affects me symptom wise than how scary it looks in the films.

Hope that helps.

__________________
Anybody who doesn't think a dog can smile has never dropped a piece of bacon.
braingonebad is offline   Reply With Quote
Unread 08-25-2008, 09:25 AM   #7
wonsaponatime
New Member
 
Join Date: Aug 2008
Posts: 1
Default Kink in brain stem

Quote:
Originally Posted by COWPATTY View Post
Okay, I Have Never Posted Any Thing, Dont Know If This Will Work But Here Goes. I Can Only Hope A Neurologist Reads It. My Son 19 Had Surgery 1 Year Ago For Chiari Malformation And Syringomyelia. It Looked Like The Surgery Went Great. But He Had Another Mri And His Brain Stem Has A Kink In It And It Did Not Have One Before The Surgery. The Surgeon Said It Is Not A Problem, But I Am Worried That It Is, Maybe He Did Not Want To Scare Me?? Does Any One Out There Know Anything About This Sort Of Occurrance After A Chiari Surgery?? I can be contacted via this forum. I Just Got This Sick Feeling That I Thought I Woulf Go On Line And See If Any One Had Any Answers. Instead Of The Stem Of His Brain Having A Smoothe Slope It Has A Kink Now. Thanks For Listening Patty!
Dear Patty, This is so Eerie.My son at age 19 had brain decompression surgery(removed skull bone)had good MRI 1 year later,next year MRI found kink in brain stem.I am leaving for Dr. appt in a few minutes.All we know so far is Nuer.M.D. told us he may have to have fusion surgery,but he also said it would be terrible.I hope this letter finds your son doing well.My prayers are with you.
wonsaponatime is offline   Reply With Quote
Unread 08-26-2008, 08:38 AM   #8
pydy9916
Junior Member
 
Join Date: Aug 2008
Location: New York
Posts: 7
Smile

Quote:
Originally Posted by COWPATTY View Post
Okay, I Have Never Posted Any Thing, Dont Know If This Will Work But Here Goes. I Can Only Hope A Neurologist Reads It. My Son 19 Had Surgery 1 Year Ago For Chiari Malformation And Syringomyelia. It Looked Like The Surgery Went Great. But He Had Another Mri And His Brain Stem Has A Kink In It And It Did Not Have One Before The Surgery. The Surgeon Said It Is Not A Problem, But I Am Worried That It Is, Maybe He Did Not Want To Scare Me?? Does Any One Out There Know Anything About This Sort Of Occurrance After A Chiari Surgery?? I can be contacted via this forum. I Just Got This Sick Feeling That I Thought I Woulf Go On Line And See If Any One Had Any Answers. Instead Of The Stem Of His Brain Having A Smoothe Slope It Has A Kink Now. Thanks For Listening Patty!
Hi..I practice in neurology and specialize in headaches. My doctor (I am a PA) is a neuroimaging specialist. We see CM alot and things can change after decompression surgery in terms of the brainstem and cerebellum moving a bit. Remember that a piece of bone was removed and this changes the pressure in the area.

IF your son has no complaints right now (no headaches, no trouble walking or moving around) I wouldn't worry about the results of the MRI. You would be surprised at the things we see in imaging! If he is having symptoms then by all means ask for a second opinion.

Good luck
Mary Kay
pydy9916 is offline   Reply With Quote
Unread 07-28-2010, 07:26 AM   #9
amanda666
New Member
 
Join Date: Jul 2010
Posts: 3
Default kinked brain stem after chiari surgery

Quote:
Originally Posted by COWPATTY View Post
Okay, I Have Never Posted Any Thing, Dont Know If This Will Work But Here Goes. I Can Only Hope A Neurologist Reads It. My Son 19 Had Surgery 1 Year Ago For Chiari Malformation And Syringomyelia. It Looked Like The Surgery Went Great. But He Had Another Mri And His Brain Stem Has A Kink In It And It Did Not Have One Before The Surgery. The Surgeon Said It Is Not A Problem, But I Am Worried That It Is, Maybe He Did Not Want To Scare Me?? Does Any One Out There Know Anything About This Sort Of Occurrance After A Chiari Surgery?? I can be contacted via this forum. I Just Got This Sick Feeling That I Thought I Woulf Go On Line And See If Any One Had Any Answers. Instead Of The Stem Of His Brain Having A Smoothe Slope It Has A Kink Now. Thanks For Listening Patty!
on june 23rd 2009 my son was admitted to addenbrookes hospital cambridge uk for decompression surgery..on the 24th the operation took place and as far as we were concerned all went went...but the next day my son developed breathing probs and was rushed in to neuro critical care...where he was sedated and tubed....after 3 atempts of trying to get the tube out ..they performed a trachoeostomy..a few weeks along the line..he had a lumber puncture and the the pressure was high...before they got him to surgery he had a fit ..unbeknown at the time this had kinked his brain stem...a drain was inserted and a MRI revealed the drain was in the right place but it also revealed the kinked brain stem. and in time this was removed and we were given the news my son was NOT going to recover...But he did...slowly from no movement at all to slight flicker of his eyelashes but my son was alive...the kink in his brain stem has affected his breathing swallowing coughing and gagging reflexes..also he retains a high level of co2.....he has been in hospital for one year and one month so far and we are awaitng rehab...but are fighting for funding to get him there as he is such an unusual case there is no nursing staff to care for him...hence we are in HDU...our hope is to have him walking again and off the oxygen and with intensive rehab getiing him to a near normal life again.....
i'm interested to see if there are anymore adults with a kinked brain stem and also any doctors who could have any input in my sons case...also from anyone else who have had a chiari....
best wishes to all
amanda.


s
amanda666 is offline   Reply With Quote
Unread 01-02-2011, 09:01 PM   #10
pom4life
Junior Member
 
Join Date: Dec 2010
Posts: 6
Default Kink in Brain Stem

Hello COWPATTY. I had Chiari decompression surgery in 2006. I had a kink in my brainstem as well. I had something called a Basilar Invagination. This is a rare condition but sometimes found along with a chiari malformation. It is when a bone called the Odontoid Process, the bone your head pivots on, or cervical vertebrae 2, is pointed in the wrong direction, causing the brainstem to kink. The pressure from the cerebellum pressing on the brain stem will cause a kink too. I hope this information helps, and it may be a worthy thing to ask your doctor. I hope all goes well for you.
pom4life is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Post-op Arnold Chiari Malformation surgery JoAnne Hobbs Arnold Chiari Malformation & Syringomyelia 13 03-06-2014 11:57 PM
Chiari Malformation? dfaulk Arnold Chiari Malformation & Syringomyelia 34 09-20-2010 07:14 PM
New to RSD and Chiari I Malformation radmom32 New Member Introductions 4 01-03-2010 11:57 AM
After Surgery For Chiari Malformation COWPATTY Social Chat 2 05-01-2008 11:10 PM
arnold chiari malformation shorty-5 New Member Introductions 1 05-30-2007 11:33 AM


All times are GMT -5. The time now is 07:57 PM.
Brought to you by the fine folks who publish mental health and psychology information at Psych Central Mental Health Forums

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.


Powered by vBulletin • Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.


All posts copyright their original authors Community Guidelines Terms of Use Privacy Policy
NeuroTalk Archives