Sorry that I missed your original post. I have cadasil, and am not taking anything for it specifically, instead I am working on high bp, diabetes, sleep apnia, and high colestral, taking meds for those. I also have resumed exercising, specifically swimming. I am a former US masters swim champion, so the swimming I do is fairly rigorous, but since I restarted exercising, I have felt great. I have to watch heating up my core temperature too high as that causes myoclonus jerking so I take cold showers and stay away from hot tubs, at least most of the time....sometimes nothing feels as good as a hot shower or a soak in a hot tub...but I usually pay a price when I indulge.
Welcome to Neurotalk, if I can be of any assistance, let me know.
I have never met a doctor (other than my neice who has seen another case of cadasil, and I expect that you have. Correct? or not??