well it has been AGES since i have posted here.
but I'm doing really well, for the most part and have been out and about quite a bit, thus no time to socialize (at least not too much).
I have been cleared of the dx of myasethenia gravis. Turns out it was a big mistake the whole time and it was medicine that was making me so sick and with so many wierd sx.
sooooo, here is what is really going on.
Symptom: Doubble vision
- always a cheif complaint - something called strabismus (or eye misalignment). Turns out that when i did some digging into medical info at MCG that they discovered during the eye surgery the the interior (medial rectus) muscle in my left eye was much bigger (geneticly) than the other muscles in either eye, thus my left eye tends to turn inward. Thus the strabismus diagnosis.
oh almost forgot to mention on the 2X vision. (see u twice twice as well my pretty)!!!! I now have really strong glasses (16 prism diopters - or about a 1/4 of an inch thick on the sides of base out prisim). That pretty much fixes the problem (until i take them off then alas I'm back where I started).
Droopy eyelids = we dont' know but the current theory is that when I'm tired the eye lids droop to try and reduce the amount of doubble vision.
the LACK OF BALLANCE = this is a big one for me now - something called Meniere's Disease. It is an inner ear disorder and it turns out THAT combined with the medicine for MG was the cause of all the balance problems and why it was so intermitant and the whole deal. I actually discovered it quite by accident b/c i went to the General Practicioner doctor for a "doubble inner ear infection" (b/c i couldn't walk straight and walked like i was drunk).
She asked me a few questions and before she even looked at me she was like yep, you have Meniere's Disease. Oh well, mystery solved and yeah, that is interesting b/c i haven't even looked it up once to find out more about it b/c really I'm too busy right now to care.
it is kinda funney, b/c back when I didn't have 2 jobs and wasn't working insane hours at both (I have my own company as well as working as a trainer at a technology company); i would have been researching the heck out of this thing. Now I could really care less if I find out more or not.
Apparently I have had it for a long period of time and now that I have my answer to most of the mysteryies in my life, I'm ready to move on and have the life that I have always dreamed of. The best part is I'm living that dreamed of life now and sometimes i have to pinch myself to realize that this wonderful life (even if i do have a chronic - i didn't have nothin' to drink yet I walk like I'm drunk disease). I just learn to hold onto everything in my path and move about oh so carefully and so ungracefully. No big deal.
But It is fun when i go with my biz contacts to the local bar and I socially drinking (my sprite of course - what you thought I'd be drinking Alcohol?)
but when I'm out socially "drinking" (as defined above) with my friends and I get asked how many I've HAD tonight...
My reply is oh about 3 pint glasses of the strongest ale known to man,...aka sprite.
They always get a kick out of that and so do i as i stagger away.
Life is fun, (if you so choose to accept the challenge of keeping it that way!)