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Baclofen - How Much Do You Take?

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Unread 12-17-2008, 08:01 AM   #1
Kitty
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Default Baclofen - How Much Do You Take?

I have been having some bad spasticity pain in my right leg. It's right behind my knee and travels downward.

I have a prescription for 10 mg Baclofen to be taken 3X daily. It's not enough. I have been doubling up and taking 20 mg two or three times daily. Sometimes that's not even enough. I guess I could tolerate the pain....but it gets annoying to never find a comfortable position to sit or lay...so I end up taking the meds.

How much is too much? What does everyone else take?
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Unread 12-17-2008, 08:33 AM   #2
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Kelly - I can't tolerate even 10 mg so I don't take anything. I move around a lot when the spasticity gets bad as I just can't stay still. I also take my Epsom salt bath and that helps quite a bit. For me, I think the Neurontin helps with some of the pain and spasticity. I can't imagine what I would be like without it. Quite honestly, I don't want to find out.

When I was at the neuros last week, we talked about the baclofen and how it made me feel at the 10 mg. She did say that 10 mg was the starting dose on the baclofen and you work your way up from there. However, since it wasn't working for me, we didn't discuss how high up I could go. Wait, 10 mg made me high enough. LOL So, rephrase, we didn't discuss the maximum dose.

If it is not working for you, call the prescribing dr and see if they can switch you to something else.
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Unread 12-17-2008, 08:41 AM   #3
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Kelly,

I'm so sorry to hear about the spasticity you are experiencing . As you know, I don't have MS but my nanan had Progressive MS and have just asked my mum and she says she took 30mg Baclofen 3x daily for the Spstricity and even that didn't help.

In the end, my nanan ended up having to get the Intravenious (sp?) Baclofen Pump has it was getting to the point where the dosage she needed orally was just too much. The pump worked really well in the beginning but has her condition deteriated, it stopped working.

I have quite a lot of muscle spasms with RSD and my doctor prescribed me 10mg Baclofen but we were finding that sometimes it was making me too "floppy" and wasn't working on the affected areas of my body so we decided to come off it.

I hope you find something that works for you and I am keeping you in my thoughts.
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Unread 12-17-2008, 09:10 AM   #4
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I take 10mg at night, and a 5mg during the day, or afternoon after getting my chores done.

It sounds like you may need to either be bumped up temp to find relief, or you may need to switch over to like a Zanaflex while this thing sorts itself out.

I love epsom salt baths, and or muscle rubs, and ben gay type products. I find that when my spasms get cranking, its best just to stop for the day, and rest. sometimes it take days and days to recover.

I hope you feel better.
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Unread 12-17-2008, 09:49 AM   #5
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Are you sure it is spasticity, Kelly?

Maybe it's just me (never asked others before), but spasticity always hits both sides (arms and/or legs) at the same time for me.

Is it possible you are experiencing sciatica or something else? Have you been checked out by your GP?

Cherie
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Unread 12-17-2008, 09:51 AM   #6
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Quote:
Originally Posted by lady_express_44 View Post
Are you sure it is spasticity, Kelly?

Maybe it's just me (never asked others before), but spasticity always hits both sides (arms and/or legs) at the same time for me.

Is it possible you are experiencing sciatica or something else? Have you been checked out by your GP?

Cherie

I'm assuming it's spasticity because I have been having it in my hand as well (right hand that is numb) and the Baclofen helps somewhat...just not enough for me to get comfortable. I guess I could take 30 mg at a time, but it would make me very woozy if I did. Baclofen is one of the drugs on the $4 generic list so that helps since I won't have any insurance after the end of the year.
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Unread 12-17-2008, 10:00 AM   #7
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I take 10 mg two times a day. I am not sure that it really helps. My spasticity is usually all on one side (left) from my rib cage down to my foot. I deal more with stiffness and that heavy feeling than with actual spasms. The spasms come and go.
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Unread 12-17-2008, 10:46 AM   #8
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at the peak of my worst spasticity I was on 30 mg, 3 times a day (total 90 mg per day)

it took me months to taper off that high a dose, but it was the only way to find out if the spasticity had faded (it did fade, eventually).

that was back in 2002, when my right foot, calf, and thigh were going nuts.

since then, I get minor spasticity on both sides, and in my feet and toes, and just recently, it has appeared in my forearms.

my GP (hah! try finding a neuro in Belize!) is attempting to import Baclofen for me, and I'm eagerly awaiting news from his office (for weeks now, sigh!)

be very careful with Baclofen around your kitties, it can be dangerous to them, so if you drop any, make sure you FIND it before they eat it:

http://www.palestineherald.com/cnhi/...yword=topstory
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Unread 12-17-2008, 10:47 AM   #9
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I take 10 mg 4 times a day and 30 - 40 mg at night before bed. There are days I can take less, but not many anymore.

Call your neuro - it might help you to add something else to the mix. I have found that the Klonipin that they rx'd for the dizziness / eye movement problems helps with the spasticity, too.
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Unread 12-17-2008, 10:52 AM   #10
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Dosage

Baclofen therapy is usually started with an initial low dose of about 15 mg daily in divided doses and gradually titrated up in a stepwise fashion until symptomatic relief occurs. The usual maximum dose is 80 mg per day.

http://www.answers.com/topic/baclofen
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