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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

Long Distance Travel Question per RSD

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Unread 04-14-2009, 01:23 AM   #11
msdrea83's Avatar
Join Date: Oct 2006
Location: Santa Cruz, CA
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i suround myself with big comfy/soft pillows, a small throw blanket, pain meds, recline the seat some...

although i think this is kinda weird, but it hurts a lot less for me when i'm actually driving then if i'm just sitting back.
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Dew58 (04-14-2009)
Unread 04-14-2009, 01:54 AM   #12
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Join Date: Jul 2008
Location: Oklahoma
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Heart Thanks You All :)

I do appreciate your sharing tips for traveling with RSD.

I don't want to burden my sister and her family with my RSD issues, so I will follow the tips that yall have shared with me.

My sister, Wanda, is 52. At 42, she had a little girl (change of life baby). Reva just turned 11 years old, and she loves art. I am an artist, and my sister ask me to teach Reva some art techniques(quilling;paper sculpture). I have a box of supplies that have several beginner's kits and quilling materials/tools, that I made just for Reva.

This will keep Reva busy and will also make it easier for my sister to get some rest. My sister also has an 18 yr old son, and a 26 yr old son. My sister and her hubby will celebrate 30 years of marriage this June. Wanda will turn 53 in May, and we plan to have a birthday party while my hubby and I are visiting.

We are keeping a positive attitude concerning the pancreatic cancer diagnosis. Hope is what we all cling to,right? I do, anyway.



A Positive Attitude Will Assist Me Toward An Active Life, Once Again

WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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Unread 04-14-2009, 12:13 PM   #13
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Join Date: Mar 2009
Location: Belgium, Europe
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Keep us posted when you get there and how things are with your sister!

Wishing you lots of strength, and courage!
All the best, Marleen
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Dew58 (04-15-2009)
Unread 04-14-2009, 11:03 PM   #14
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Location: murfreesboro tn
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i am will be keepin your family in my prayers. yes hope is the key i have found .. my grandmother found out 1.5 yrs ago that she had stage 2 breast cancer and we all kept hope she couldnt do chemo and all that but she is doin ok ..

about the car ride pillows and light blanket and i do have to stop alot otherwise i get to stiff to even move .. try that ..

i never asked where in OK you live? i used to live in omaha. guess i brought tornado ally with me to TN ..

please let us know how things go..

hope this finds all in less pain

rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,,

please check out our website to help bring awareness to RSD!

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