I had never heard of Neuropathy until i was affected by it myself, and i would say there would be a lot of you that had not heard of this disease either, until it actually affected you or someone else that’s very close to you.
It doesn't help much either when even the majority of general practitioners in not only my country but what i have read previously at BT ,that most Gp's can't even pickup on the obvious symptoms of PN, which i believe is in their medical training to become a doctor.: confused:
One way to attract public awareness of this disease is through the media, I mean Television, but how to achieve this is the million dollar question.
We do need Celebrities like Opera, etc & current movie stars, singers, that have a huge following world wide, those are the people that can get the word out about PN.
We also need the medical world behind us too, neuro's, pain specialists and any other medical profession that comes across PN affected patients on a daily basis and see's first hand how people have to suffer so much because of this awful disease, it would help if they started creating a noise too about the insufficient funds for research of PN.
Of course our world revolves around the almighty dollar and getting through to our politicians to let go of some of that money isn't going to be easy, but it can only happen if the general public in whatever country we live in, puts on enough pressure on our poly’s to make them dig deep in their pockets for research.
I really hope one day that there won't be anyone described as “idiopathic " anymore, wouldn't that be just great.