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shunt related eye problems

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Unread 08-06-2009, 09:11 PM   #1
lezliej
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Default shunt related eye problems

My 16 year old daughter just had a shunt revision. She started seeing spots, which seemed to bother her only when she had chores to do, at any rate, it ended up being paplidema (spelling?) which was the result of pressure building up from a failing shunt.

Her vision before the shunt failure was 20/20.... day prior to surgery it was 20/90 in one eye and 20/100 in the other.

One month after surgery her vision is now 20/40 in one and 20/400!!! No tearing of the retina evidently so that's a good thing I guess.

Does anyone have any experience in this? Will the vision return? If so how long should we wait before we start to get ultra concerned? We're scheduled to go back to the optometrist in 4 weeks.

Any suggestions as to what I should be doing and/or who I should be consulting with would be great! Thanks....
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Rudy Parr (10-18-2009)
Unread 08-07-2009, 06:10 PM   #2
jadiee-x
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Hiya,
Although im not sure of my vision scores, i am aware that since i were diagnosed papilledema prior to surgery back in september, my vision has gradually gone down the drain.
The day i was told i had it, my vision was better than perfect, in both eyes, i was given icp monitoring just to measure the amount of pressure, although it was giving me no cause for concern at the time, during the icp monitoring, i had a shunt malfunction, after surgery my papilledema had gone, but my right eye was slightly double vision at a certain distance, the other remained perfect.

Since september, ive had a number of shunt problems and had 10 shunt related operations. Involving a conversion from VP to VA, shunt removal with craniotomy and fenestration and after that failed 3 weeks later, i then had my VA shunt put back in.

2 days ago I went to see the opthamologist for a visual fields test, turns out my perfect eye now has vision loss along with the other, and after looking behind eyes its evident that there is bruising but they are unable to tell whether this is due to present pressure building once again or whether its old bruising from a few weeks back prior surgery.
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Unread 08-10-2009, 03:31 PM   #3
lezliej
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Quote:
Originally Posted by jadiee-x View Post
Hiya,
Although im not sure of my vision scores, i am aware that since i were diagnosed papilledema prior to surgery back in september, my vision has gradually gone down the drain.
The day i was told i had it, my vision was better than perfect, in both eyes, i was given icp monitoring just to measure the amount of pressure, although it was giving me no cause for concern at the time, during the icp monitoring, i had a shunt malfunction, after surgery my papilledema had gone, but my right eye was slightly double vision at a certain distance, the other remained perfect.

Since september, ive had a number of shunt problems and had 10 shunt related operations. Involving a conversion from VP to VA, shunt removal with craniotomy and fenestration and after that failed 3 weeks later, i then had my VA shunt put back in.

2 days ago I went to see the opthamologist for a visual fields test, turns out my perfect eye now has vision loss along with the other, and after looking behind eyes its evident that there is bruising but they are unable to tell whether this is due to present pressure building once again or whether its old bruising from a few weeks back prior surgery.
Thanks for the input. I'm sorry to hear that you are having so many problems. In a weird way it's comforting to know we are not alone in this.

It tells me that I she should probably see an opthamologist for more tests. I appreciate you taking the time to help and I hope that your symptoms subside and give you some piece of mind SOON!
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Unread 10-18-2009, 12:55 AM   #4
Rudy Parr
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No. When I had my shunt put in I was just a little over a months old. I've had sixth nerve palsy since. I also have to wear glasses. Sorry I couldn't be of more help
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