bruegger84

what is the best medication or treatment options for CFS/fibro?

or what ones have u tried that u hav success with?

I take gabapentin 300 mg, lexapro 10mg, klonopin .5mg prn, buspar 30-40mg(5HT1a agonist) helpful, pamelor 25mg, and i once took topamax but now am no longer taking it.

I'm reading a book that says calcium channel blockers are helpful, but it seems that when i talk to doctors they say that they are too much of a hindrance in terms of side effects. is there any truth to that answer?

would clonidine(which is an alpha adrenergic2 agonist) amantidine, or mirapex(dopamine agonist) be helpful?? sudafed and guaifenisin, seems to help me as sudafed(phenylephrine) is an alpha adrenergic1 agonist)

it seems that any drug that is an agonist is helpful to me, cuz the antagonists ones just seem to drag me down. any drug that antagonizes and hits the 5HT1a, H1, m1-m5, or 5HT2 receptors, seems to make me irritable/tired/fatigued especially if it hits it hard. like many of the tricyclics/neuroleptics do.

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dx: migraines/fibromyalgia, depression, insomnia. general anxiety, eustachian tube dysfunction, no more benzos, esophageal motility disorders. throat spasms. HIC

is semi-allergic to aspirin, if i take it i hack up a storm.

omega 3 fish oil, b complex, white willow garlic oil(for my ears) vitamin D3,

generally trying to find out what works for me

billie

If sudafed and guaifenisin have helped, ephedrine HCL, minus the guaifenisin would probably really help. It's illegal to ship it to Texas, but not in all states. 1-800-221-1833. Catalogue is Diet * Nutrition * Energy. Brand is Bolt Ephedrine HCL.

billie

What do you take for esophageal motility disorders. Reglan is getting the "black box" for S/E, notably tardive dyskinesia. Parlodol or something like that was nixed long ago.

Megan

I know the question was not addressed to me, but I have been on Domperidone for gastric dysmotility - Gastroparesis (and associated oesophageal dysmotility) for about five months now and this has helped the nausea immensely. Now on Cisapride (Prepulsid) for the past one week and waiting to see if I improve enough to eat solid food.

However I feel that the oesophageal dysmotility has worsened in the past few weeks while still on the Domperidone (Motilium). Will discuss this with my GI doc at next week's appointment.

Interested to know how many FMS people are affected by oesophageal and gastric paralysis as opposed to the frequently touted IBS?

bruegger84

people generally take verapamil, diltiazem, or nifidepine(calcium channel blockers) for esophageal spasm/motility disroder/angina.

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dx: migraines/fibromyalgia, depression, insomnia. general anxiety, eustachian tube dysfunction, no more benzos, esophageal motility disorders. throat spasms. HIC

is semi-allergic to aspirin, if i take it i hack up a storm.

omega 3 fish oil, b complex, white willow garlic oil(for my ears) vitamin D3,

generally trying to find out what works for me

mrsD

Have you read this yet?

http://neurotalk.psychcentral.com/thread20030.html

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billie

I believe I have esophageal or gastric dysmotility. I take Reglan for it, and it helps tremendously. I am just now exploring any neurological dx's and it is difficult to get to an out of town doctor as I can only drive in town and familiy is far away. I have recently seen negative things about Reglan on TV and have wondered if my bruxism is related to tardive dyskinesia. Thank you for your information about the Domperidone. I though Propulside was no longer on the market, but Prepulside may be different altogether. What is the nature of FMS? billie

Megan

Hi Billie,

I am in Australia and even though Prepulsid (Cisapride) is now a non-approved drug globally, doctors here in Australia can get a special exemption to order it for compassionate reason but have to get a permit first through our TGA (Therapeutic Goods Administration). Perhaps a similar process can happen for you wherever you live.

This journey to 'diagnosis' is a long one and for me at the moment I rest in the Fibromyalgia basket but also have severe Gastroparesis along with 25 other symptoms - whether these are part and parcel of Fibromyalgia or part of something else yet to be discovered is anyone's guess!

Interesting though neither of the Neurologists I consulted with mentioned/considered Fibromyalgia in their provisional diagnoses.

I wish you well in your journey.

Megan

Shelley

Honestly an antiviral med - valtrex and l-lysine as it seems most of my issues are viralin nature, especially the CFS. There is a new study going on at Stanford with Dr. Montoya that holds alot of promise for CFS.

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Go Blue!