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Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS).

pain in legs from sleeping on side

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Unread 09-11-2009, 05:19 PM   #1
jacorn
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Default pain in legs from sleeping on side

Does anyone else have terrible pain upon waking in their legs.. from hip down. it will wake me up the burning pain is so bad and I wonder how I am going to move.. I sleep mostly on my left side so this afternoon I laid on my right side for a nap and now both sides are hurting so bad alone with across the sacral areas... I have been diaganosed with fibromyalgia but also have peripheral neurophathy of both feet so which is causing the pain I am not sure. I am sitting here not knowing what to do.. sure as heck my dr. doesn't so any help will be welcomed... Joan
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Unread 09-11-2009, 05:46 PM   #2
Jo*mar
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I found and posted about some gentle stretches and yoga that seem to be helpful for my low back,hip, leg, gluteus maximus pain..
http://neurotalk.psychcentral.com/thread102673.html

maybe some of those will help you.
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Unread 09-13-2009, 08:52 PM   #3
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The thing I've found that is the best for my feet and legs has been the weekly massage therapy. And the heating pads I use.

Donna
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Unread 11-24-2009, 12:27 AM   #4
rdawes26
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I get pain like that as well. I am constantly awoken throughout the night with pain in my hips. I have noticed though that anytime I apply pressure to any part of my body for any length of time I get the same result. I have to actually switch side to side all night in order to avoid the pain, and I too use heating pads combined with stretches.

Sorry to hear this about you. Good luck

Chad
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Unread 01-04-2010, 12:32 PM   #5
vannafeelbettr
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Default I get the best relief from....

Sleeping in a recliner or on the couch. The recliner forces me to not sleep on my side (I am a side sleeper --if I sleep on left, left side hurts; if I sleep on right, right side hurts). Also, when I sleep on couch I can distribute some weight on the back of the couch so not all weight is put on just my side.

I know these are drastic measures -- as we "should" sleep in a bed -- but I am much better in the mornings for it

Best of Luck Vanna
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Unread 03-21-2010, 08:10 PM   #6
Muffy1219
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I have peripheal neuropathy, kind of an unusual case since we cannot find one pain med that works on me & that included a series of epidurals. I fall asleep purely from exhaustion because when I get in that bed at night I cannot lie in one position more than a few minutes. Its horrible.

I spent most of the last 2 yrs. in bed. Always with changes, skin problems, hives more intense pain. Its been crazy. SO we are now trying diet & exercise to see if I drop some weight & stop eating the foods that I have allergies too, whats going to happen.

To be honest I have had enough doctoring & enough setbacks from trying all these medicines that have made me sick. When I stop taking a med that makes me sick by that time its irritated my nerves & I'm in bed from anywhere from 3 days to 3 months. I decided to try the diet thing because Doc wants to insert an under the skin pain pump & see if that would work>>>>I'm not ready for that.

My pain use to come in little episodes, now in the last 4 months I use to have maybe 5 good days ......this month that ended. The pain( I mean intense #10 Pain) won't leave. SO I drug myself to the YMCA. My ex got himself a membership thru his insurance co.. While there the director gave me a free 2 weeks just for us to see if I could get there & get in the pool. Have not been able to drive for 4 yrs. so ex takes care of me & my disabled Veteran hubby.

Well I did it. Altho I had to wait 5 days before I could go cause I got sick & could not walk at all. But as soon as I felt better we went. The 1st week I spent 4 days in the pool. I use to teach water aerobics for seniors & heavy women so I knew what to do. BUT I'm out of shape so bad from being in bed everyday so objective was to go & just move.......carefully & slowly. IT worked & I was completely freaked out. All that night time tension in my legs, charlie horses, muscles jumping around & aching so terribly bad. IT ALL STOPPED.

Now it did nothing for the peripheal nueropathy in my feet & hands but just losing that aching in my legs helped me to calm down more at night. I stopped going only because I have not got the money yet to buy a membership & guess what the pain is all back. Also I noticed going every other day helped but if I missed 2 days in between they ached a bit.

Its really hard to drag myself out of the house for this. I don't go out. SO getting there w/ my cane or walker & getting undressed & then getting in the pool & then out & trying to get dressed after the swim. Well I just made up my mind no matter how much it hurts I'm gonna do it & see where it gets me in 6 months. There is a private handicapped shower bathroom so I have a chair in there so I can sit down while dressing. I bought pool shoes so I don't fall on the tiles & I also wear them right into the pool.

My work out: Still working on this. BUT...its important to make your time in the pool beneficial so ya gotta get aerobic. I walk in the pool for 30-35 minutes pushing water. Then 10- 15 minutes of easy swimming not a lot with my legs in the deep end. My feet hurt more as I am in the pool & when I get out I need help walking cause they hurt. Temp of pool is 85.

I stay away from heat cause I have a huge deep whirlpool/ jet tub at home. The jets hurt my legs & forget hot water dips. The heat really hurts my feet.
Hot tub is just too hot for me.

Believe me some days there I hated going out of my houser....but that pain pump idea is pushing me to try this. I will buy the membership April 1st. I will try to go everyday. Getting up & getting a shower (very hard for me) & getting dressed & out of the house everyday is gonna be a good start for me to break away from this ...."I'll never get better "attitude.

I also worked out on the circuit, nothing like the weights I use to be able to handle....remember the idea was to just move around & get my body working. I have no stamina at all. I did 10lbs. on most of the machines & needed help on & off of them. Some I just had to pull the pin with no weight. Most importantly was motion & getting the muscles to wake up cause mine are gone.After swimming and such I just felt stronger & even managed to get a few things done at home. I can't clean house anymore. I just can't stand at all & most of the time the pain is so intense that it makes me sick to my stomach.

My age is 52.
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Unread 03-23-2010, 06:02 PM   #7
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try a pillow between your knees,, sometimes works for me
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Unread 03-23-2010, 09:28 PM   #8
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No matter what we have to work to get better.

Donna
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Unread 05-22-2010, 10:18 AM   #9
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Quote:
Originally Posted by jacorn View Post
Does anyone else have terrible pain upon waking in their legs.. from hip down. it will wake me up the burning pain is so bad and I wonder how I am going to move.. I sleep mostly on my left side so this afternoon I laid on my right side for a nap and now both sides are hurting so bad alone with across the sacral areas... I have been diaganosed with fibromyalgia but also have peripheral neurophathy of both feet so which is causing the pain I am not sure. I am sitting here not knowing what to do.. sure as heck my dr. doesn't so any help will be welcomed... Joan
Hi Joan,
Leg pain! I had it so bad for a long time when I was first under a lot of stress, that was almost two decades ago. I learned that vitamin B12 reduces the pain, and if enough lozenges are used (or shots) the pain goes away completely. But, then if there's more stress and the amount of B12 isn't raised to cope with the additional stress... the pain sets in again.

I was diagnosed with fibromyalgia by a wholistic doctor who gave me a prescription for a B12 shot a day. I just did not see how that could be right, and I didn't begin to use that much till I had tetanus and no money and couldn't see a doctor... then I began using the shot a day (It was about $6 for a bottle of 30 shorts worth of cyanocobalamin from WalMart) and the really horrible peripheral neuropathy pain in my right thigh, that had felt as if someone was shooting molten glass into it, went away... It took two or three months of that much cobalamin... it wasn't an overnight "cure"...

Now I use Methylcobalmin lozenges because ... well because they aren't are hard to use as shots are... shots, even if they work great, get really tiresome... It took awhile to switch to the Methylcobalamin because one lozenge (1mg) has to be used every day for a month to equal one shot... but eventually I got switched over, and now I wouldn't go back, even though the cobalamin for shots is much less costly.

The overall kind of pain I used to have is gone... (I should be more thankful than I am... the pain that's left ... I shouldn't let it get me down so much... but really, I don't think it's the pain getting me down as much as the fact that my mortgage lender is dishonest... and I also have to keep dealing with dishonesty from IRS which appears to want to rule from a position of fear, rather than respect.)
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Unread 05-25-2010, 08:49 AM   #10
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Neuropathy can cause this kind of pain. There is another option as well, trochanteric bursitis can feel like nerve pain and if you sleep on your side, your tronchanteric prominence is exactly where this bursa is and where the pressure is when you sleep on your side. It hurts alll the way to your butt. It can get so bad, you can not even touch your middle glut area without wincing in pain. It is 10 out of 10 pain. It is disabling. It is horrible pain.

I have PN and I have connective tissue disease with recurrent bursitis. In 3 years, I tore both rotator cuffs and have had repeated bouts of trochanteric bursitis of both hips. A cortisone shot will relieve the pain. It is a shot into the bursa, not the joint, so the pain is minimal. I don't even get the lidocaine prep shots, I just have them hit me with the needle.....yeah there is a bit of discomfort, but, then it is over and in a few days you feel much better. Ask the doc if it could be bursitis.

There is a limit to how many times they will give the shots and I have hit it now....not sure what I will do. Surgery is not a good option for me.
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