New here and looking for friends! - Page 3

kim ames · 11-07-2009, 07:28 PM

Quote:

Originally Posted by mellowguy

hey kim,
just a quick note to let you know that we are hoping you are experiencing the least level of pain. As each day goes by, there is new hope for research to find an antidote to this agony that errupts our sympathetic nervous system. Don't be afraid to vent or ask anything of us. No one will turn you away or think negative thoughts of you. As I said before, we are all rowing the same boat together and, If we are to reach the shore of healing, we have to communicate our wishes and desires of what direction to steer the craft. As wind is to a sail, so is our hope of relief. Hope your having a better day and your mood is bright. Peace be with you, mellowguy

Hi Mellowguy!

Thanks for your words of encouragment! I really appreciate everyone's advice and genuine concern. I'm aware that RSD affects the entire family, not just the one with it; and I feel so guilty and selfish for easily sharing my pain with my loved ones. It's very refreshing to have an outlet to vent where everyone else understands completely. I feel like I have found a home because of you! Hope you have a wonderful, pain-free day.

mellowguy · 11-07-2009, 08:21 PM

Quote:

Originally Posted by kim ames

Hi Mellowguy!

Thanks for your words of encouragment! I really appreciate everyone's advice and genuine concern. I'm aware that RSD affects the entire family, not just the one with it; and I feel so guilty and selfish for easily sharing my pain with my loved ones. It's very refreshing to have an outlet to vent where everyone else understands completely. I feel like I have found a home because of you! Hope you have a wonderful, pain-free day.

no problem. Glad to have helped. Have a pain free night and tomorrow

ALASKA MIKE · 11-07-2009, 09:12 PM

hang in there Kim.

have you tried the fentanyl patches? rolfing? phenergan 25 or belladonna for the nasea?

Mike

Quote:

Originally Posted by kim ames

Hi everyone. My name is Kim and I was diagnosed in January of this year with RSD. I am new at this, so please bare with me and help me navigate as I become familiar with this site.

I would very much like to chat with you and hear your stories. I have been unable to work since October, 2008 because of this illness, and I feel like I am losing my mind! I was injured at work; hit in the left hip/buttock by a steel cart while I was squatting down. Torn hamstring and Piriformis Syndrome. My symptoms didn't improve, and finally in January of this year I was diagnosed. Since then, I have seen MANY doctors, had P.T., Chiropractic and accupuncture. I have had several EMG's (awful!), and a series of Sympathetic Nerve Blocks. I have atrophy in my leg of one inch, and can hardly walk, much less function! My Pain Management doc is very unsympathetic to my needs, as I react poorly to Narcotics and am physically sick almost every day. I am at my wits end -- sick from the meds, or in agony from the pain. I just want to be listened to, and have someone understand my situation.

If anyone is willing to give me advise, please do! Thank you all for listening!

kim ames · 11-08-2009, 06:59 PM

Quote:

Originally Posted by ALASKA MIKE

hang in there Kim.

have you tried the fentanyl patches? rolfing? phenergan 25 or belladonna for the nasea?

Mike

Hi Mike!

Thanks for the response. No, my unsympathetic pain doc won't prescribe them for me. I was taking Phenergan 25, my nuerologist took me off because of muscle tics, but I started them again; I would rather twitch than vomit. I go for my Independant Medical evaluation next month, and after that I am switching to a more caring and understanding pain doc. (W/C insurance games). I realize that we all need to make choices to become semi pain-free, so to me, this is the lesser of two evils. Hope all is well with you and yours.

Kim