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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

Information on a Prialt Pump

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Unread 02-04-2010, 12:07 PM   #1
chefsuzz05
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Default Information on a Prialt Pump



I am wondering if any one has had any experience with the Prialt Pump? The original site of my crps is my left foot/leg, diagnosed in sept 09. Oct 09 it spread to the hip and cocyxc . In Nov. it started to mirror to my left foot and bottocks. My PM doc said that it was progressing very quickly. I was scheduled for a spinal cord stimulator in Jan which turned out miserably. I was in the procedure room longer than I should have been. I only had the spinal cord stim in for 1 1/2. I couldn't get the level past 1.2 and they removed it. I came home and laid in bed for 6 days as I had been in severe pain and I lost urine continency, which I have not regained. I had an mri done and found out that I have 4 lumbar disks that are bulging and 1 that is ruptured. During the exam with the neurologist he used the small mallet on my right knee which swelled 4 times the normal size which has only returned to 2 size but not normal.

Now Dr. Hicks is requesting that I have a prialt pump and I would like to know if anyone has had one done. What your experiences were?


Thanks for letting me vent. Please respond I need advice from my firends and the ones who know.
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Unread 02-04-2010, 12:19 PM   #2
Jimking
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I'm learning about the pump as we speak. Check this thread by LostMary
http://neurotalk.psychcentral.com/thread113740.html.
Lostmary would be the one to chat with.
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Unread 02-04-2010, 12:56 PM   #3
lostmary
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Hi,

Give me a PM and I'll tell you about what I'm going thru. I have the pump, but I have Duiladad in it. It is WONDERFUL.... I'll be waiting to hear from you.

Hugs
Mary

I am wondering if any one has had any experience with the Prialt Pump? The original site of my crps is my left foot/leg, diagnosed in sept 09. Oct 09 it spread to the hip and cocyxc . In Nov. it started to mirror to my left foot and bottocks. My PM doc said that it was progressing very quickly. I was scheduled for a spinal cord stimulator in Jan which turned out miserably. I was in the procedure room longer than I should have been. I only had the spinal cord stim in for 1 1/2. I couldn't get the level past 1.2 and they removed it. I came home and laid in bed for 6 days as I had been in severe pain and I lost urine continency, which I have not regained. I had an mri done and found out that I have 4 lumbar disks that are bulging and 1 that is ruptured. During the exam with the neurologist he used the small mallet on my right knee which swelled 4 times the normal size which has only returned to 2 size but not normal.

Now Dr. Hicks is requesting that I have a prialt pump and I would like to know if anyone has had one done. What your experiences were?


Thanks for letting me vent. Please respond I need advice from my firends and the ones who know.[/quote]
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Unread 02-06-2010, 10:41 AM   #4
ALASKA MIKE
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Quote:
Originally Posted by chefsuzz05 View Post

I am wondering if any one has had any experience with the Prialt Pump? The original site of my crps is my left foot/leg, diagnosed in sept 09. Oct 09 it spread to the hip and cocyxc . In Nov. it started to mirror to my left foot and bottocks. My PM doc said that it was progressing very quickly. I was scheduled for a spinal cord stimulator in Jan which turned out miserably. I was in the procedure room longer than I should have been. I only had the spinal cord stim in for 1 1/2. I couldn't get the level past 1.2 and they removed it. I came home and laid in bed for 6 days as I had been in severe pain and I lost urine continency, which I have not regained. I had an mri done and found out that I have 4 lumbar disks that are bulging and 1 that is ruptured. During the exam with the neurologist he used the small mallet on my right knee which swelled 4 times the normal size which has only returned to 2 size but not normal.

Now Dr. Hicks is requesting that I have a prialt pump and I would like to know if anyone has had one done. What your experiences were?


Thanks for letting me vent. Please respond I need advice from my firends and the ones who know.

I moved my pump trial up to next week so i talked to my doc at my preop appt. 2 days ago and he went over 10 different meds they use in the pumps. he did the trials for prialt so he knows alot about that drug. basically it came from the conch shell or snails toxins and it instantly makes you numb when you get stung, that is its way of defending itself in the ocean. because i have a lot of low back pain from failed surgeries, he is going to try dilaudid first because it spreads out better than fentanyl and prialt and many others. morphine spreads better, but i am alergic. when i talk about spread, i am talking about distance from the spinal cord, like arms and legs. doc mentioned he will use mixes down the road to try also. such as baclofen or any antispasm med.

the first med tried for pump trials is morphine cuz you get the most coverage but it is the least powerful of the meds so sometimes it dosnt work. diladid is 4 times more powerful i think and it gets almost the same coverage. prialt has some nasty side effects just like other meds. doc says we can add it later but its best to start slow.

because i am not getting prialt put in this time i stopped asking questions about it but next time in i will ask anything you want me to so just write down what questions you want me to ask. like i said he did the fda stage2 and 3 trials before prialt even had a name.
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Unread 11-04-2012, 01:57 PM   #5
tsi25
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Default prialt pump

I am also looking for information on the prialt pump for my CRPS. I have tried everything including the spinal cord stimulator which was unsuccessful. I am trying to find some pictures of what it will look like after as well as some info on success and long term. If anyone can help I would greatly appreciate it. I am so frustrated and a bit scared.
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