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Anyone who has had spinal cord stimulator

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Unread 03-03-2010, 11:43 AM   #1
staceyc
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Default Anyone who has had spinal cord stimulator

I'm looking for anybody who has had a spinal cord stimulater inplanted, or anyone who has heard of it.
I am in a lot of nerve pain and my doctor has suggested this for me. I've done all the other steps in pain management.The next thing is to get the spinal cord stimulator or surgery for disc replacements.
[b]I would love to speak to anyone concerning these topics[/B].
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Unread 03-03-2010, 05:52 PM   #2
Leesa
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Hi Stacey ~ I had the SCS implanted for 6 months, but then had to have it removed.

I went thru the trial period, but the dopes (pardon) gave me so many restrictions on what I could and couldn't do that I didn't get a good assessment of pain relief. During the trial, of course I thought I was getting good pain coverage, cause they didn't let me really DO anything! So I went ahead and had it implanted. After the healing period, I went about my normal routine and WOW ~ it hurt like the devil!!! The SCS just irritated things instead of covering the pain. I had it reprogrammed many times, but no soap. Also, since I wasn't a very big person, the stupid generator tried to work itself out!!! UGH. I had to hold it in with an ace bandage! LOL. So obviously, it had to come out, and believe me that's work taking it out than it is putting it in cause scar tissue has formed around the leads in the upper back and around the generator. I still have a very sensitive spot in my upper back and I imagine I always will.
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recovering alcoholic, sober since 7-29-93;severe depression; 2 open spinal surgeries; severe sciatica since 1986; epidurals; trigger points; myelograms; Rhizotomy; Racz procedure; spinal cord stimulator implant (and later removal); morphine pump trial (didn't work);now inoperable; lumpectomy; radiation; breast cancer survivor; heart attack; fibromyalgia; on disability.



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Unread 03-03-2010, 05:55 PM   #3
Leesa
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Sorry, but my stupid computer posted this before I was done. Anyway, they never told me you had to be a certain 'weight' or have a certain amount of 'fat content.' They should have LOOKED at me before implanting it! They would have been able to see that I was too thin. Then the idiots wanted to try the morphine pump on me, so not knowing anything, I said sure! It was WONDERFUL and I got TOTAL pain relief!!! Then they said i couldn't have it cause it's 3 times HEAVIER than the SCS! What idiots! It's almost laughable!

Anyway, that's my story. If you have further questions, let me know. The surgery is a cinch. No problem. God bless and take care. Peace, Lee
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recovering alcoholic, sober since 7-29-93;severe depression; 2 open spinal surgeries; severe sciatica since 1986; epidurals; trigger points; myelograms; Rhizotomy; Racz procedure; spinal cord stimulator implant (and later removal); morphine pump trial (didn't work);now inoperable; lumpectomy; radiation; breast cancer survivor; heart attack; fibromyalgia; on disability.



Often the test of courage is not to die, but to live..
.................................................. ...............Orestes
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Unread 03-04-2010, 10:47 PM   #4
Rrae
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Default Hi Stacey

A new forum specific to SCS Implants was just created last month
Here is the direct link to the SCS and Pain Pumps forum
http://neurotalk.psychcentral.com/forum118.html

I just had my stimulator implanted a week ago and it helps alot with the nerve pain in both legs. They also programmed it to cover my lower back as well, even tho the pain there was minimal. But the constant burning leg pain is what has taken 5 years of my livelihood.
It is a big decision and must be weighed very carefully, but it has helped many people get their lives back.
Do alot of research B4 making a decision. But the good thing is, you can do the trial implant to see for yourself if it will target your particular areas. I would encourage you to at least do the trial.
Feel free to pm me with questions.
Best wishes
Rae
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Unread 03-05-2010, 12:48 AM   #5
ibjustwrite
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Default day two with the stimulator

Quote:
Originally Posted by staceyc View Post
I'm looking for anybody who has had a spinal cord stimulater inplanted, or anyone who has heard of it.
I am in a lot of nerve pain and my doctor has suggested this for me. I've done all the other steps in pain management.The next thing is to get the spinal cord stimulator or surgery for disc replacements.
[b]I would love to speak to anyone concerning these topics[/B].
Hey there,

I got the trial stimulator put in yesterday, so maybe I could fill you in on how it has worked for me so far. Again, this is only day two, but so far I am happy with it. It is true that the limitations are pretty strict during the trial. No lifting, no bending or twisting. Basicaly, they want to keep the lead stable because it hasn't been firmly attached yet.

Anyway, I just wanted to know that I could walk and stand for more than a few minutes. I have lower back and hip pain that is high level and chronic. I have been almost bed-riden for a long time. I am pleased to tell you that so far I have been able to back off my meds a little bit on only day two, and if it weren't for the surgery site pain, I would be backing off the meds even more.

I actually went outside and walked down the sidewalk just to the next house, but that was something I would not have been able to do before the implant. I am scared to believe this is working, cause everything else has failed, but I told the implant rep to start the paperwork for thr permanent implant.

I'll keep you posted if you want, and if you have any questions let me know
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Rrae (03-07-2010)
Unread 03-05-2010, 06:32 PM   #6
abrown176
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I had my SCS implanted in April 09. It does work for the nerve pain in my legs. I am not a light person and my generator still sticks out to the point of uncomfortable. I have had two surgerirs since the implant on it. I just fell and ripped the internal stiches and will be undergoing one more to repair them. I dont know if I had it to do over with if I would implant it but, I hate since going through the surgeries and it does work for the pain to take it out. I guess I'll just have it repaired. Do lots of research before making a decision. I had never had back pain before the surgery and know it hurts worse than the RSD did. My thoughts and prayers are with you as you have to make this difficult decision for yourself.
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Rrae (03-07-2010)
Unread 03-09-2010, 02:39 PM   #7
jgianniny
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Default I might have what you are looking for

Quote:
Originally Posted by staceyc View Post
I'm looking for anybody who has had a spinal cord stimulater inplanted, or anyone who has heard of it.
I am in a lot of nerve pain and my doctor has suggested this for me. I've done all the other steps in pain management.The next thing is to get the spinal cord stimulator or surgery for disc replacements.
[b]I would love to speak to anyone concerning these topics[/B].
I used a device after one of my spine surgeries (Lumbar fusion with instrumentation) that was intended to stimulate the spine and the bone graft. Is that what you are looking for? I'd be happy to see it could help someone. It cost me over ten thousand dollars and didn't work in my case because I developed other problems it was never intended to correct. If it might help you, you are welcome to it. I'm just not certain based on your description if we are talking about the same device....I think mine is made by OrthoLogic and its called a SpinaLogic s/n 7008909 let me know. Good luck.
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Unread 07-09-2010, 01:49 PM   #8
donnap9
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Default Have SCS

Quote:
Originally Posted by staceyc View Post
I'm looking for anybody who has had a spinal cord stimulater inplanted, or anyone who has heard of it.
I am in a lot of nerve pain and my doctor has suggested this for me. I've done all the other steps in pain management.The next thing is to get the spinal cord stimulator or surgery for disc replacements.
[b]I would love to speak to anyone concerning these topics[/B].
I had my SCS implant feb 2009 and I love it, it has been a God sent to me. I have had back pain for 30yrs. This is the only thing that has worked and given me my life back without pain. I throught I was going to have to go on disability. The only thing I would do different was to request the charger be implanted in my stomach. It would be easier to get to and charge. Best of Luck Donna
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Rrae (08-14-2010)
Unread 08-14-2010, 10:04 AM   #9
gcardcor
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Default

Quote:
Originally Posted by staceyc View Post
I'm looking for anybody who has had a spinal cord stimulater inplanted, or anyone who has heard of it.
I am in a lot of nerve pain and my doctor has suggested this for me. I've done all the other steps in pain management.The next thing is to get the spinal cord stimulator or surgery for disc replacements.
[b]I would love to speak to anyone concerning these topics[/B].
I have an implant for almost 4 yeras is not working I'm still in lots of pain and on top of that i can't have any MRI done .do not have it implanted.
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Unread 08-15-2010, 10:17 AM   #10
hurting
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Default should I or should I not

gcardcor

Please don't hold back tell me how you really feel about the SCS. Kidding really if you could give more insight as to why it did not work for you. More info would be great like where was/is your pain what kind of pain nerve, bone, muscle, ect. Did it do any good as far as relief what so ever or were you expecting more from it. Did you Dr. over sell it to you.

My Dr. is trying to hard sell me on have this done, but after what a TENS unit did for my nerve pain I am very concerned as to how this will react with my nerve problem.

So any more information as to why it did not work for you in more detail my help many more people here on this forum that just mite help them with the same pain problem that you still have.
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