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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

RSD affects your lungs?

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Unread 03-07-2010, 12:56 PM   #1
abrown176
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Default RSD affects your lungs?

My daughter has had asthma since she was born. I was just reciently diagnosed with asthma in 08. This was after I developed RSD. I was 27 and for the first time in my life I had asthma. I was sent to a pulminoligist because my lung function was awful. The doc just like blew me off and said it was asthma. It is just odd to develop asthma so late in life. I was just reading an article on how RSD affect your lungs heart and your internal organs. For almost a year I have been dealing with what feels like galbadder pain. Test after test they say its fine. But after reading this article it seems that RSD can affect your internal organs. I just curious if the doctor might think that the lung function problems and the galbadder pain can be coming from the RSD. It just seems there is few doctors out there who even consider that RSD is real. OR possibly they just don't take the time to learn about it. I had to be hospitalized over the pain in my galbladder over night to get some meds that would work. The article says that her husband died of the RSD had got to his heart and it swelled and he died in his sleep. This all makes me curious if this is what is affecting my internal organs or if its just asthma. Does any body have any thoughts on this subject or has ever heard of such a thing happening?
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Unread 03-07-2010, 01:00 PM   #2
abrown176
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This is the website I found the story: http://livingwith.neurologychannel.c.../20090310_8192

Thanks for listening maybe this will help me with the understanding of its affects.
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Unread 03-08-2010, 02:12 AM   #3
loretta
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Quote:
Originally Posted by abrown176 View Post
My daughter has had asthma since she was born. I was just reciently diagnosed with asthma in 08. This was after I developed RSD. I was 27 and for the first time in my life I had asthma. I was sent to a pulminoligist because my lung function was awful. The doc just like blew me off and said it was asthma. It is just odd to develop asthma so late in life. I was just reading an article on how RSD affect your lungs heart and your internal organs. For almost a year I have been dealing with what feels like galbadder pain. Test after test they say its fine. But after reading this article it seems that RSD can affect your internal organs. I just curious if the doctor might think that the lung function problems and the galbadder pain can be coming from the RSD. It just seems there is few doctors out there who even consider that RSD is real. OR possibly they just don't take the time to learn about it. I had to be hospitalized over the pain in my galbladder over night to get some meds that would work. The article says that her husband died of the RSD had got to his heart and it swelled and he died in his sleep. This all makes me curious if this is what is affecting my internal organs or if its just asthma. Does any body have any thoughts on this subject or has ever heard of such a thing happening?
Thank you so much for the information. Welcome although I'm so sorry you have RSD. You'll find so much support and comfort here. I've been reading on the site you gave us-thank you.
I've had this 15 years. full body and now internally entire pelvic region and afraid my lungs are involved. I have gasping for air at night and day. I
also had a negative heart test. passed out for an hour or an hour and half -low blood pressure. I'm going to see lung specialist next-have a good RSD Dr.
Will keep in touch . Yes, internal involvement happens. Do you have heat radiating off your skin where your gallbladder is? I do-entire pelvic region. Hot to the touch and red to color.
A website that is good is rsdrx.com go to puzzles list It is 146 questions and Dr. Hooshmands answers. He practiced 40 years. Now retired, but has another Dr. taking his patients-Florida Question 127 discusses internal organ involvment.
Let us know how you are doing. One of your new friends, loretta with big soft hugs
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Unread 03-08-2010, 07:18 AM   #4
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Quote:
Originally Posted by abrown176 View Post
My daughter has had asthma since she was born. I was just reciently diagnosed with asthma in 08. This was after I developed RSD. I was 27 and for the first time in my life I had asthma. I was sent to a pulminoligist because my lung function was awful. The doc just like blew me off and said it was asthma. It is just odd to develop asthma so late in life. I was just reading an article on how RSD affect your lungs heart and your internal organs. For almost a year I have been dealing with what feels like galbadder pain. Test after test they say its fine. But after reading this article it seems that RSD can affect your internal organs. I just curious if the doctor might think that the lung function problems and the galbadder pain can be coming from the RSD. It just seems there is few doctors out there who even consider that RSD is real. OR possibly they just don't take the time to learn about it. I had to be hospitalized over the pain in my galbladder over night to get some meds that would work. The article says that her husband died of the RSD had got to his heart and it swelled and he died in his sleep. This all makes me curious if this is what is affecting my internal organs or if its just asthma. Does any body have any thoughts on this subject or has ever heard of such a thing happening?


I have had RSD for 6 years and I was super healthy before all this happened. I have issues, not major, metabolic system, thyroid,which I always had but worse now, breathing, swallowing and digestive. All that I mentioned I never had any problem except for the thyroid as I said, I am hypo-thyroid...

I wonder if it's the RSD or the treatments we do. I have done 5 day in-patient ketamine infusions 3 times so I wonder. Please don't take my comments about the ketamine in the wrong way the ketamine helped tremendously.


Gabbycakes
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Unread 03-08-2010, 06:11 PM   #5
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I went & read the article & HOLY COW!! I had no idea it could affect the heart like that. I have gotten lazy since for the last 7 years up until Oct 09 my symptoms stayed relatively the same as when this hit me. I had tried about all but infusions. And I would have said I was stable. So I had not been doing any research to speak of on the computer & the last couple of years since first loosing Ron in 07 I haven't been on the computer much at all. So no I had no idea that this could actually kill a person. I have not gotten the nerve to let my husband know this. Not yet anyway. That would scare him to death so I need to find the right time to tell him. Heck it scares me too.

Thanks for posting the article

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Unread 09-17-2011, 08:04 PM   #6
Jerie
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Quote:
Originally Posted by abrown176 View Post
I was just reading an article on how RSD affect your lungs heart and your internal organs. For almost a year I have been dealing with what feels like gal badder pain. Test after test they say its fine. But after reading this article it seems that RSD can affect your internal organs. I just curious if the doctor might think that the lung function problems and the gal badder pain can be coming from the RSD. It just seems there is few doctors out there who even consider that RSD is real. OR possibly they just don't take the time to learn about it.
I have been having issues since I had foot surgery in May 2011. After nerve stimulation in PT i began to have burning nerve pain. It migrated from my foot to my hip, then within a week spread to my lungs, mouth, lips and even in a nostril. I got a toradal shot because it had worked for chest pain I had gone to the ER for in the past. Your comments about the gall bladder thing interest me. I had this strange sensation that went from my throat to my head that made me feel like my vascular system was being affected. It was also like my lungs were on a bronchial diolator. I had felt this sensation before RSD with chest pain.
I wonder if what everyone is calling the different stages of RSD are in fact all the last stage of RSD. When it finally affects the tissue and color of the affected area recently injured. Every injury I have has has caused nerve problems. The first burning nerve pain I ever felt was in my thigh after kidney donor surgery. My hip has been a constant problem since, now my fibula has a cystic cyst in the head and my feet have been morphing. Which brought on the foot surgery, which I was hoping would improve my gait and hip/knee pain. My theory is my feet were already affected by bone changes from RSD so the vascular and edema issues on the limb would only be natural as I accidentally injured my tendon stepping down on the foot right after surgery when I lost my balance on a knee scooter.
I have had numerous episodes of chest pain radiating through the back unexplained for years. The recent lung burning and that freaky head feeling brought back my first chest pain episode.
Anyone else feel they had neurological issues before being diagnosed with RSD?
Jerie Q
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Unread 09-17-2011, 09:12 PM   #7
keep smilin
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Originally Posted by Jerie View Post
I have been having issues since I had foot surgery in May 2011. After nerve stimulation in PT i began to have burning nerve pain. It migrated from my foot to my hip, then within a week spread to my lungs, mouth, lips and even in a nostril. I got a toradal shot because it had worked for chest pain I had gone to the ER for in the past. Your comments about the gall bladder thing interest me. I had this strange sensation that went from my throat to my head that made me feel like my vascular system was being affected. It was also like my lungs were on a bronchial diolator. I had felt this sensation before RSD with chest pain.
I wonder if what everyone is calling the different stages of RSD are in fact all the last stage of RSD. When it finally affects the tissue and color of the affected area recently injured. Every injury I have has has caused nerve problems. The first burning nerve pain I ever felt was in my thigh after kidney donor surgery. My hip has been a constant problem since, now my fibula has a cystic cyst in the head and my feet have been morphing. Which brought on
the foot surgery, which I was hoping would improve my gait and hip/knee pain. My theory is my feet were already affected by bone changes from RSD so the vascular and edema issues on the limb would only be natural as I accidentally injured my tendon stepping down on the foot right after surgery when I lost my balance on a knee scooter.
I have had numerous episodes of chest pain radiating through the back unexplained for years. The recent lung burning and that freaky head feeling brought back my first chest pain episode.
Anyone else feel they had neurological issues before being diagnosed with RSD?
Jerie Q


Hi everyone....

I'm an internal organ sufferer...RSD beginning in my rt. Leg after knee surgery 5years ago...After much outside travel, my tummy and GI are now an issue...tummy burns and motility is said to be an issue...But what has really gotten my attention is for years prior to my dx of RSD ...I have suffered chest pains..ouch!! Dr. Believed I had an arthemia and mitro value prolapse..but all test show now..that is not the case...plus some hearing loss one one side..Can this all be contributed to RSD?? HUMM? I also have gasping, shortness of breath which happens from time to time...ESP. When I'm tired or nervous..It's some big puzzle that comes together when you really sit down and think...how long have I or we really had this RSD issue??!

Hugs, Kathy
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Unread 09-21-2011, 05:11 PM   #8
Jerie
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Quote:
Originally Posted by keep smilin View Post
Hi everyone....

I'm an internal organ sufferer...RSD beginning in my rt. Leg after knee surgery 5years ago...After much outside travel, my tummy and GI are now an issue...tummy burns and motility is said to be an issue...But what has really gotten my attention is for years prior to my dx of RSD ...I have suffered chest pains..ouch!! Dr. Believed I had an arthemia and mitro value prolapse..but all test show now..that is not the case...plus some hearing loss one one side..Can this all be contributed to RSD?? HUMM? I also have gasping, shortness of breath which happens from time to time...ESP. When I'm tired or nervous..It's some big puzzle that comes together when you really sit down and think...how long have I or we really had this RSD issue??!

Hugs, Kathy
Wow Kathy,
I have hearing loss in my left ear. I had palsy in that side of my face a couple months after kidney surgery. What ever is going on rapidly went south this time. In just one week burning spread from the injured leg to all ectremities, then chest wall and face. Two days ago I was having burning pain in my right hand. It swelled up first 2 knuckles and right under my baby finger on hand, later from elbow to wrist swelled on the bone line and then the thumb started restricting and my lower arm started stiffing up. I thought RSD only affected the injured limb ( I had foot surgery) and then I remembered my right arm is an injured limb from years ago. I have electric shocks in arm pit and breast and carpel tunnel. I hurt that arm at work in early 2000.
The weather is starting to change and I am noticing something new about the cold. It hurts my nerves. This morning I got out of the shower and as soon as the air hit me I was on fire. My Aveno face lotion I always use set my face on fire today too. When a nurse took blood when I came in for swelling right hand, (on my left) the alcohol wipe was oh so ugly!
I am so mad. I called the Dr 3 times in 2 days for pain meds and no answer. I have some oxycodone left from old prescription but it really doesn't work good on this kind of pain. Have you or anyone else tried a pain patch? I was thinking that might work better for the sudden onset of firey pain. I can deal with the burning pain but that firey stuff, wow, pretty hairy stuff.
Thanks for letting me now I'm not crazy about my having RSD for years theory. Someone else has thought the same thing too.
Jerie
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