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Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS).

pin pricks all over, electrical crawley feelings

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Unread 09-24-2010, 09:17 PM   #1
invisable
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Default pin pricks all over, electrical crawley feelings

Does anyone else experience these odd sensations, not limited to certain parts of body (happens everywhere, head to toe.)

I don't have a lot of muscle aching, mine are abnormal neuro sensations, every possible test known to man came back negative...........It has to be Fibro!!

I am on 900mg. Neurotin/day.
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Unread 10-02-2010, 07:08 PM   #2
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I get that.....I call the 'electric shockers' = zingers and the 'crawly' feeling = mice. I only get those sensation in my neck and shoulder area which is also affected by RSD. The rest of my body's fibro issues are the 'typical' aches and overwhelming fatigue.
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Gee, this looks like a great place to sit and have a picnic with my yummy bone !
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Unread 10-06-2010, 08:39 AM   #3
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I think you have parasites. Any crawling sensation on/under the skin like things moving around is parasites. It could also be mites.

This is like me i was diagnosed with peripheral neuropathy and allover abnormal sensations like freezing feeling of electricity going through my limbs, feeling crawling, tingling, numbness and what not and it turns out i DON'T have peripheral neuropathy but rather a chronic hidden infection of strongyloidiasis.
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Unread 10-06-2010, 09:13 AM   #4
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from MetalMX:

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I think you have parasites. Any crawling sensation on/under the skin like things moving around is parasites. It could also be mites.

This is like me i was diagnosed with peripheral neuropathy and allover abnormal sensations like freezing feeling of electricity going through my limbs, feeling crawling, tingling, numbness and what not and it turns out i DON'T have peripheral neuropathy but rather a chronic hidden infection of strongyloidiasis.
Did you get a firm diagnosis with lab specimens, identifying your worm infestation?
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Unread 10-07-2010, 07:46 AM   #5
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No nothing was found in blood tests or stool samples.

I ended up doing a muscle biopsy which diagnosed the parasites

(Strongyloides Stercoralis & Trichinella Spiralis)

Causing Trichinosis and Strongyloidiasis.

I also have a nasal parasite although i cannot confirm it but i had gotten relief from difficulty breathing through my nose using ivermectin
which apparently kills these things... i still cannot believe all my problems have been caused by these things. this nasal parasite
is called leishmania or donovan something like that.

These things have ruined my life and left me with minimal friends from all the symptoms im constantly experiencing i cannot
be around many people nor can i explain to anyone why i feel like **** nor do i want to.
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Unread 10-07-2010, 08:50 AM   #6
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That sounds awful...

In a young person with THREE parasitical diseases I'd really look at life style and figure out how you contracted these, and make some changes.

There is a relatively common nasal pathogen, but it is not a parasite. It colonized the sinuses, and often comes from using Neti Pots frequently with tap water (instead of sterile saline products).

It is a mycobacterium and very resistant to antibiotics, so once a person is infected, it is really hard to eradicate.
http://abclocal.go.com/wabc/story?se...cal&id=6046064
This organism also infects surgical areas, when poor sterilization is used (for example where in office plastic surgery cases are done instead of a hospital)

One of our posters on NeuroTalk was colonized with this, and cultures done at Mayo.
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Unread 10-08-2010, 07:10 AM   #7
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I would love to know what this nasal thing is. I cant breathe at times and it feels like their is something crawling in my sinuses/lungs/throat... i have difficulty swallowing and smell/taste sensations which are heavily reduced. It could be that mycobacterium in the link you posted i will look more into it.

Their is no information on that site regarding what the organism is actually called, do you know the name?

Thanks very much.
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Unread 10-08-2010, 07:36 AM   #8
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Mycobacterium chelonae

example: http://emedicine.medscape.com/article/222790-overview

The increasing use of Neti pots with inappropriate water has led to it being investigated here in US as causing chronic sinusitis, as that article I put up yesterday showed.

You know, the fluids in the sinuses do move around some. When lying down, you can feel this and sometimes hear a crackling sound. Using a mucolytic like guaifenesin sometimes helps move mucus out. And sometimes a turbinate bone will move and block the exit from the nose, and that can be fixed by an ENT usually in the office with a local anesthetic.
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Unread 12-02-2010, 10:07 PM   #9
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Quote:
Originally Posted by invisable View Post
Does anyone else experience these odd sensations, not limited to certain parts of body (happens everywhere, head to toe.)

I don't have a lot of muscle aching, mine are abnormal neuro sensations, every possible test known to man came back negative...........It has to be Fibro!!

I am on 900mg. Neurotin/day.
Hey Invisable,
Nice to meet you.

I know this is an older post, but I'm new and it pretains.

I get lots of weird feelings. My thighs and back get little tingling feelings when I over use them (usually precludes a sore day). I also have a feeling like something is crawling over my feet when I stand barefoot in one spot too long (like washing dishes!). I also get electric jolts up my arm when I use my hand too much (like with a computer mouse or handheld device). I also get this weird feeling like my phone is on vibrate and goes off in my pocket (or around my hip area) and my phone isn't in my pocket.

I don't know why any of these happen, or what condition of mine cause them. I have so many things to discuss with my Dr when I am in, these seem insignificant, so I forget to bring them up.

Hope you have figured out something for yourself by now.

best,
mj
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Unread 12-08-2010, 03:45 PM   #10
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Quote:
Originally Posted by invisable View Post
Does anyone else experience these odd sensations, not limited to certain parts of body (happens everywhere, head to toe.)

I don't have a lot of muscle aching, mine are abnormal neuro sensations, every possible test known to man came back negative...........It has to be Fibro!!

I am on 900mg. Neurotin/day.
YUP, All over body vibration, skin crawling, little clusters of cold sharp pains, sudden big deep sharp pains here and there. YAY, its a party!

I have lots of trps in my neck, right side and down the back of my shoulder. This contributes to these sensations.
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